| Cerebral Palsy Foundation

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June 6, 2023

APPLES - A Safe and Effective Early Intervention for Hand and Arm Use

This study tested the safety and effectiveness of a neuroscience-based, multi-component intervention designed to improve motor skills and sensory processing of the more-affected arm and hand in infants with CP where one side is more impacted than the other (asymmetric CP).

April 28, 2023

Changes over time in speech classification between 4 and 10 years in children with cerebral palsy

Speech impairments like dysarthria are common in children with cerebral palsy (CP) which can greatly affect participation across environments. Our study examined how speech impairment severity changes over time in 101 children with CP at 4, 6, 8, and 10 years of age.

April 6, 2023

Finding Your Voice & The Best Communication System For You

When a person is looking for a way to communicate in alternative ways, they need to find something that really works for them. They need to try to find a voice that sounds natural. They want to try to find a way to be efficient. They want to be able to communicate as normally as possible, even though they're not using their biological voice.

Stick Figure sitting in wheelchair using laser pointer to communicate

March 9, 2023

Episode 10: Early Detection and Intervention with Dr. Nathalie Maitre

Dr. Nathalie Maitre discusses the CPF Early Detection and Intervention Network and helps us to understand how babies learn, how CP impacts the developing brain, and early intervention strategies that can help.

Natalie Maitre has shoulder length sandy blonde hair and blue eyes. She is wearing a blazer and smiling

January 10, 2023

Dysarthria and Cerebral Palsy Fact Sheet

Dysarthria is a motor speech disorder that affects how clear and understandable a person’s speech is. Between 50-90% of people with CP have dysarthria.

JJ Dimeo with on-screen siblings sharing a laugh and using AAC device

August 16, 2022

NINDS/NICHD Cerebral Palsy Strategic Plan

The National Institute of Neurological Disorders (NINDS) and the National Institute of Child Health and Human Development (NICHD) are hosting a national cerebral palsy research workshop that will help develop the next US strategic plan for cerebral palsy research, to be held virtually on August 17 and 18.

August 11, 2022

How Living With Cerebral Palsy and Metastatic Breast Cancer Has Changed My Perspective on My Health

Living with CP taught Dr. Kathleen Friel much about educating others about her disability and now about her life threatening diagnosis of Metastatic Breast Cancer.

Kathleen Friel, PhD with short brown hair, smiling wearing a black shirt surrounded by a green circle with the inscription Cerebral Palsy Foundation, 2021 National CP research awareness award

July 5, 2022

CPF LIVE! with Christina Smallwood: Behind the Scenes with Fifi and Mo

CPF Executive Director Rachel Byrne and Christina Smallwood talk about parenting, raising a child with cerebral palsy and helping her learn to advocate for herself.

Fifi is a little girl standing in front of her purple walker wearing a grey t-shirt with her hands fisted in the air. She is smiling and has brown hair. She is next to her mom who is wearing a white cowboy hat, dark glasses, has long blonde hair and is smiling wearing a grey shirt and jeans.

April 20, 2022

CPF LIVE! with Mary Lauren Neel, MD: Life after the NICU

CPF Executive Director Rachel Byrne and Dr. Mary Lauren Neel, MD discuss Life after the NICU.

Mary Lauren has curly blond shoulder length hair and is wearing a white lab coat. She is smiling

April 13, 2022

CPF LIVE! with Chris Modlesky, PhD: Exercise, Fitness and Research

CPF Executive Director Rachel Byrne and Chris Modlesky, PhD discuss exercise, fitness, research, research funding and his current research.

Christopher Modleski has dark hair and is smiling wearing a white button down and grey blazer

December 8, 2021

Breast Health Experiences in Women with Cerebral Palsy: A Qualitative Approach

The purpose of this study is to explore the breast cancer screening experiences of women with CP with the aim of identifying factors that could improve screening rates for women with disabilities.

October 29, 2021

BREAST HEALTH: Optimizing Mammography Services for Women with Disabilties

Breast cancer is a major cause of mortality in women. Screening has been known to improve early detection for early treatment. Women with disabilities face many physical and attitudinal barriers to mammogram screenings. This webinar has been created to address the educational needs of technologists and to give women with cp and disabilities visual accurate information about the procedure.

October 27, 2021

It's OK to ask!

It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions

A young woman sits in front of a brick wall in a wheel chair smiling off to the right. Drawn pink squiggles surround her.

September 28, 2021

CPF LIVE! with Jocelyn Cohen: Research Collaboration

CPF Executive Director Rachel Byrne and Jocelyn Cohen, Vice President of Communications and Engagement at Cerebral Palsy Alliance Research Foundation discuss collaboration in research.

Joycelyn has long brown hair and is smiling. She is wearing a pink shirt.

September 28, 2021

CPF LIVE! with Kristen Allison, PhD, CCC-SLP

CPF Executive Director Rachel Byrne and speech therapist, Kristen Allison, PhD, CCC-SLP discuss communication and Cerebral Palsy.

Kristen has long blond hair and is smiling wearing a blue sweater

July 1, 2020

Sexual and reproductive health guideline for providers treating young women with cerebral palsy.

This fact sheet is a sexual and reproductive health guideline for providers treating young women with cerebral palsy.

July 1, 2020

What to Know During your OB/GYN Appointment

For women with Cerebral Palsy, self-advocacy is probably the most important part, but it's also probably the hardest part because most of those doctors have not encountered women with disabilities. You really have to tell them what you need and tell them what to expect.

A screenshot from the YouTube video, "What to know during your appointment"

July 1, 2020

What to Know Before your OB/GYN Appointment

When scheduling and preparing for an OB/GYN appointment, women with Cerebral Palsy have additional challenges to consider and address when both scheduling the appointment and once they go their appointment.

A screenshot from the YouTube video, "What to know before your appointment"

July 1, 2020

Tips For Having a Successful OB/GYN Appointment

For women with Cerebral Palsy, finding a new OB/GYN can be difficult for a variety of reasons: accessibility (both to the building and in the exam rooms), staffing and supports for additional physical needs and more.

A screenshot from the YouTube video, "Tips"

July 1, 2020

Talking About Sex

Up to 50% of adolescents with cerebral palsy have an intellectual disability, as well as a physical disability. Adolescents with intellectual disabilities still need sexual health education, they just need it in a way that's more individualized so that they can understand it and use it.

Representation of a woman surrounded by sexual education related text

July 1, 2020

On International Women's Day

On International Women’s Day, We Celebrate These Trailblazing Women with CP

"The Future Is Female" written in text in the center surrounded by images of several women advocates with disabilities

July 1, 2020

Neuroplasticity

Neuroplasticity is the ability that the brain has to form new connections between different cells or between different areas of the brain.

Representation of a magnifying glass magnifying the neurons in the brain

July 1, 2020

Let's Get Social

July 1, 2020

Breast Health and Mammography

It is recommended that women start having mammography screenings starting at about the age of 40, and it becomes more difficult to obtain these services if you have a disability.

July 1, 2020

Finding Your Passion

We all have different towns and we all have different things that we do in the course of the day. It may be that the student is a great artist or a great writer. When it comes to assistive technology we have to think about what is going to give that student the ability to do what they love without having to see roadblocks and go, "I can't do that”. There are so many tools out there, whether it's a communication app, a video app, a math tool. With assistive technology you are not making the student into what you want them to be.

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