Since 2005, the CP community has increased its focus on the need for federally funded cerebral palsy research. Our community has come together to request answers to so many basic questions about this critical public health issue and the most common lifelong motor disability, that has not been a federal research priority.
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NIH Designates People with Disabilities as a Population with Health Disparities People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities. -
2023 Appropriations Act The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy! -
Congressional Briefing for Cerebral Palsy On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates. -
Cerebral Palsy Research Act The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here: -
The History of Research Advocacy in Cerebral Palsy March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead. -
NINDS/NICHD Cerebral Palsy Strategic Plan The National Institute of Neurological Disorders (NINDS) and the National Institute of Child Health and Human Development (NICHD) are hosting a national cerebral palsy research workshop that will help develop the next US strategic plan for cerebral palsy research, to be held virtually on August 17 and 18.
Cerebral palsy is one of the most common of all diagnosed childhood disabilities, and nearly 10,000 babies born each year will develop CP, yet, there is currently no designated federal funding for CP research