| Cerebral Palsy Foundation

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October 26, 2022

Theodore "Armpit" Johnson tries his best to keep out of trouble after being released from juvenile detention. But it's hard to do when the only person who believes in you is your ten year old neighbor with CP, and people from the past are trying to get you back into bad habits.

Multi-colored footsteps leading upwards on a navy blue background

October 26, 2022

The Summer I Got A Life

The Summer I Got A Life by Mark Fink follows brothers Andy and Brad as they navigate love and adventure during one unforgettable summer.

Boy in blue jeans and gray sneakers dangling his legs over a brick wall

September 7, 2022

Reaching For Sun

In "Reaching For Sun" by Tracie Vaughn Zimmer, Josie Wyatt knows what it means to be different. Even if Josie wants to forget that she was born with a disability, her mom can't seem to let it go.

August 25, 2022

Understanding Supportive Standing Devices

Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!

Ginny wearing a purple shirt smiling with a little boy lying in a red stander

August 16, 2022

Evidence and Guidance for Support for Standing

Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.

August 16, 2022

Complex Rehabilitation Technology Fact Sheet

Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.

Bower in a power wheelchair wearing a black shirt and tan pants smiling and driving with a head array

July 18, 2022

CPF LIVE! with Minnelly Vasquez: Mental Health

CPF Executive Director Rachel Byrne and Minnelly Vasquez, Licensed Clinical Social Worker with the Weinberg Cerebral Palsy Center at Columbia University Irving Medical Center, discuss mental health care for individuals with cerebral palsy and caregivers.

Minelli Vasques has curly brown hair, she is smiling and wearing glasses. She has a white shirt and a black blazer with her arms crossed in front of her.

July 13, 2022

Pediatric Bimanual Therapy: A Scoping Review of Patients, Methods, and Outcomes

Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.

July 5, 2022

CPF LIVE! with Gili Segall: Supporting Our Children and Ourselves

CPF Executive Director Rachel Byrne and psychologist Gili Segall, PhD discuss mental health during these constantly changing times and how to create strategies to help everyone in the family thrive.

Gili Segal has long brown hair and is wearing pink shirt

June 30, 2022

Caregiver Knowledge and Preferences for Gross Motor Function Information in Cerebral Palsy

This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.

June 29, 2022

Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System

The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.

June 29, 2022

Stability of the Gross Motor Function Classification System in Children and Adolescents with Cerebral Palsy: A retrospective cohort registry study

The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.

May 17, 2022

Episode 10: The Role of Physiatry and Neurosurgery in the Care of Cerebral Palsy at Gillette Children's

In this 2022 episode of "Let's Talk CP" host Jen Lyman talks with neurosurgeon, Dr. Debbie Song, and physiatrist, Dr. Marcie Ward about their role in the care of Cerebral Palsy at Gillette Children's.

Debbie Song has dark hair pulled back and is wearing a black turtle neck. She is standing next to Marie Ward who has long dark hair and is wearing a grey blazer over a black shirt.

April 21, 2022

The Power of Wheels

Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.

Photo of David Stoner, wearing a blue shirt, sitting in his black wheel chair with a tree in the background.

April 20, 2022

CPF LIVE! with Mary Lauren Neel, MD: Life after the NICU

CPF Executive Director Rachel Byrne and Dr. Mary Lauren Neel, MD discuss Life after the NICU.

Mary Lauren has curly blond shoulder length hair and is wearing a white lab coat. She is smiling

April 13, 2022

Preventive Care for Adults With Cerebral Palsy and Other Neurodevelopmental Disabilities: Are We Missing the Point?

Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.

March 29, 2022

Episode 9: The Ins and Outs of Powered Mobility with Dr. Lisa Kenyon

Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.

March 25, 2022

Congressional Briefing for Cerebral Palsy

On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.

March 22, 2022

CPF LIVE! with Mary Gannotti: Pain Across the Lifespan

CPF Executive Director Rachel Byrne and Mary Gannotti, PhD, PT discuss pain across the lifespan in cerebral palsy.

Mary Gannotti has long brown hair and is smiling. She is wear a purple top and a purple beaded necklace.

March 3, 2022

New Horizons Virtual Town Hall 7 - Can Exercise and Physical Activity Help Reduce Spasticity and Improve Function?

Our educational series continues with this virtual event featuring a multi-disciplinary panel discussion on exercise and physical activity and its impacts on spasticity and function.

Head Shot of Dr. Christopher Modleski wearing a grey jacket & white shirt, head shot of Dr. Wendy Pierce wearing a tan shirt, and Dr. Byron Lai wearing a black jacket with a red tie. The text says Can Exercise and Physical Activity Help Reduce Spasticity and Improve Function? Register for Free, Town Hall on March 9, 2022.

March 2, 2022

Understanding Pain with Cerebral Palsy Fact Sheet

The Cerebral Palsy Foundation has created a factsheet to help guide you in understanding and treating pain with CP. This fact sheet has been created for individuals with cerebral palsy to provide basic guidance surrounding common causes and potential treatment of pain.

Every person who has cerebral palsy experiences pain differently

February 7, 2022

Episode 9: Meet the Gait Lab Experts at Gillette Children's

In this new 2022 episode of "Let's Talk CP" host Cynthia Frisina talks with Dr. Tom Novacheck and Dr. Andrew Georgiadis from Gillette Children's about gait, gait analysis, and what makes Gillette Children's such a special place.

Dr. Georgiadis on left with short dark hair and glass wearing a pink tie, blue shirt and dark jacket, next to Dr. Novachek with dark hair and glassed wearing a blue shirt and maroon tie.

February 2, 2022

Can Genetic Testing Help You or Your Child?

Now you can receive a no-cost genetic test for you or your child sent directly to your home.

Young girl and woman smiling while looking at a tablet

November 10, 2021

Navigating the Pathway to Care in Adults with Cerebral Palsy

October 27, 2021

Episode 8: Cerebral Palsy Health. Disability and Employment with Sarah Storck and David Stoner

Individuals with disabilities have opportunities to work, receive employment training and coaching, benefits counseling and save money without losing means tested benefits. This podcast discusses these options.

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