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August 25, 2022

Understanding Supportive Standing Devices

Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!

Ginny wearing a purple shirt smiling with a little boy lying in a red stander

August 23, 2022

IEP Checklist

This IEP Checklist should provide helpful support when preparing for, setting goals, maintaining communication and achieving student success!

Graphic of a teacher in front of a chalk board with a child in a wheelchair observing

August 23, 2022

8 Helpful Back-to-School Tips for Students with IEPs

A new school year means new teachers, a new grade, new friends, new goals and maybe even a new school. Our friends at Learning Disabilities Online have put together these helpful tips to help you and your child or teen transition back to school a little easier.

August 16, 2022

RESNA (Rehab Engineering and Assistive Technology Society of North America)

RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.

August 4, 2022

Mac Keith Press Plain Language Summaries

Plain Language Summaries are an excellent way to get a clear overview of clinical research. Our friends with Mac Keith Press and the AACPDM Community Council have worked together to choose articles that might be right for you.

July 20, 2022

RaceRunning training improves stamina and promotes skeletal muscle hypertrophy in young individuals with cerebral palsy

The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.

July 13, 2022

Pediatric Bimanual Therapy: A Scoping Review of Patients, Methods, and Outcomes

Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.

June 30, 2022

Caregiver Knowledge and Preferences for Gross Motor Function Information in Cerebral Palsy

This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.

June 29, 2022

Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System

The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.

June 29, 2022

Stability of the Gross Motor Function Classification System in Children and Adolescents with Cerebral Palsy: A retrospective cohort registry study

The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.

April 13, 2022

Preventive Care for Adults With Cerebral Palsy and Other Neurodevelopmental Disabilities: Are We Missing the Point?

Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.

March 25, 2022

Congressional Briefing for Cerebral Palsy

On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.

March 17, 2022

Early Powered Mobility

Early powered mobility has been shown to improve cognition in children with multiple, complex disabilities.

March 8, 2022

Food Insecurity

Good nutrition is critical for your child's healthy brain development. It's not uncommon for families to struggle getting enough food to eat. If you feel like you haven't had enough food to feed your whole family in the last month, please talk to someone. This is a common problem.

Representation of parents seated at a table feeding their child at the center

March 2, 2022

Understanding pain evaluation in cerebral palsy

Pain in people with cerebral palsy is very common, and probably not evaluated frequently enough.

Representation of person using crutches with red circles radiating around their shoulders representing pain

March 2, 2022

Pain Assessment Toolbox for Kids with Disabilities

A lot of people with cerebral palsy will experience pain over the course of their life. Through better assessment we can provide better interventions, which will lead to a better quality of life.

February 24, 2022

Winter Paralympic Sports for Athletes with Cerebral Palsy

The Winter Paralympics is a great opportunity to learn about the many adaptive recreational and competitive sports for individuals with cerebral palsy.

Young person wearing a red and white parka with blue pants and a black helmet snowboarding

February 2, 2022

Can Genetic Testing Help You or Your Child?

Now you can receive a no-cost genetic test for you or your child sent directly to your home.

Young girl and woman smiling while looking at a tablet

December 8, 2021

Breast Health Experiences in Women with Cerebral Palsy: A Qualitative Approach

The purpose of this study is to explore the breast cancer screening experiences of women with CP with the aim of identifying factors that could improve screening rates for women with disabilities.

November 10, 2021

Navigating the Pathway to Care in Adults with Cerebral Palsy

November 5, 2021

Optimizing Health and Wellbeing Across the Lifespan

Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.

October 28, 2021

Special Needs Trusts - Advantages of a Pooled Trust

Setting up a Third Party-Special Needs trust as part of estate planning is essential if the individual with a disability is or may be eligible for means-tested government benefits. A properly set up Third Party Trust ensures that the funds left to the individual, whether through gift or inheritance, are not considered countable assets when applying for means tested benefits

Illustration of a bank over a bluish purple background with the heading Get the Facts: Advantages of a Pooled trust

October 15, 2021

Special Needs Trusts - First Party or Third Party?

A special needs trust is a written legal agreement that enables an individual with a disability to qualify or remain qualified for means tested government benefits, such as medicaid, SSI or even medicaid waivers.

Expert Tips for Special Needs Trusts written over a green background with an illustration of a hand holding a lightbulb with coins in it.

October 6, 2021

Insights From Genetic Studies of Cerebral Palsy

Cohort-based whole exome and whole genome sequencing and copy number variant (CNV) studies have identified genetic etiologies for a sizable proportion of patients with cerebral palsy (CP). These findings indicate that genetic mutations collectively comprise an important cause of CP.

July 8, 2021

ACCESS 2 CRT (Complex Rehab Technology)

Access2CRT is here to empower advocates with the information and resources needed to promote and protect access to Complex Rehab Technology (CRT) access for people with disabilities and Cerebral Palsy.

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