Welcome to That Mom With CP-a space created to celebrate and support mothers with cerebral palsy through shared stories, adaptive parenting tips, and honest conversations about self-care and disability.
For as long as I can remember, I dreamed of being a mama and for equally as long, I just couldn’t comprehend the dream coming true, for me. Yet, I had NO frame of reference or role models for mamas with CP.
Discover how living with cerebral palsy has made me a more patient, adaptable, and intentional mom—and why disability can be a strength, not a setback.
An honest, uplifting look at motherhood with CP — what I feared, what I learned, and how becoming a disabled mom became my greatest strength.
This research studied falls in ambulatory children and adults with CP specifically asking how often they’ve fallen, fall-related injuries experienced, circumstances around the fall, the level of fear or concern about future falls, and the extent to which they do or don’t avoid certain activities due to their concern about falling. This study sets a strong foundation for future fall research, quantifying the breadth and depth of the problem across a large spectrum of age and walking ability.
Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.
These instructional videos brought to you by Enable Ireland are designed to give families the tools to help teach children with ambulatory CP the skills needed to ride a bike with confidence.
In Episode 3 of Coffee Talk, Nathalie and Jen discuss their experiences with fitness for their sons with CP.
Ian "Two Guns" Cannon shares his story of overcoming adversity and empowerment through adaptive boxing.
Accessible Yoga Practices is a great weekly newsletter and downloadable yoga guide for those with disabilities and caregivers interested in practicing yoga, on your own terms.
This review explores how muscles adapt to various forms of exercise in children and adolescents with CP.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
Too often, people with disabilities are relegated to being passive when it comes to the arts.
Jerron Herman, dancer, actor, trainer and more describes how he moves with spastic hemiplegia...and it might just surprise you!
Dr. Tom Novacheck, of Gillette Children's, describes the characteristics of the 4 types of unilateral, otherwise known as hemiplegic gait, and how the use of clinical instrumented gait analysis can help with treatment decision making.
Dr. Tom Novacheck, Gillette Children's, describes what to look for in each of the 4 different gait patterns seen for those with bilateral cerebral palsy and considerations for each type.
Dr. Debbie Song, Gillette Children's, gives an overview of common neurosurgical procedures to address global tone in individuals with cerebral palsy.
Understanding different gait patterns is important because it can determine what interventions will potentially be the most effective.
Living with CP taught Dr. Kathleen Friel much about educating others about her disability and now about her life threatening diagnosis of Metastatic Breast Cancer.
The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.
In this 2022 episode of "Let's Talk CP" host Jen Lyman talks with neurosurgeon, Dr. Debbie Song, and physiatrist, Dr. Marcie Ward about their role in the care of Cerebral Palsy at Gillette Children's.
CPF Executive Director Rachel Byrne and Dr. Paulo Selber discuss the ins and outs of gait analysis for cerebral palsy.
Our educational series continues with this virtual event featuring a multi-disciplinary panel discussion on exercise and physical activity and its impacts on spasticity and function.
