| Cerebral Palsy Foundation

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December 8, 2022

JSH Educational Webinar 5: Cultivating Welcoming Communities

This webinar with Rachel Byrne, Executive Director of Cerebral Palsy Foundation, Ashley Harris Whaley, Director of Communities and Engagement, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program.This video series is a partnership with the New York City Department of Education and the Cerebral Palsy Foundation "Just Say Hi" Disability Education Curriculum. This series is meant to educate and empower parents of students with diverse needs.

Welcoming communities - webinar listing image

December 8, 2022

JSH Educational Webinar 7: The Balancing Act

This webinar with Jennifer Lyman, Content Manager for CP Resource and parent of a teen son with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success and participation at school and in the community.

The Balancing Act: Meeting Students where their at and motivating them where they can go

December 8, 2022

JSH Educational Webinar 1: What is Disability - Introducing Disability

This webinar with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. It It aims to provide an overview of disability history and laws.

What is Disability? Disability History and Laws

December 8, 2022

JSH Educational Webinar 6: Adapting to Support Learning At Home

This webinar with Jacqueline Wentworth, Pediatric Occupational Therapist and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success at home.

November 18, 2022

New Horizons Virtual Town Hall 8 - Deep Dive Into Understanding Spasticity

Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.

August 25, 2022

Understanding Supportive Standing Devices

Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!

Ginny wearing a purple shirt smiling with a little boy lying in a red stander

August 16, 2022

Evidence and Guidance for Support for Standing

Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.

August 16, 2022

Complex Rehabilitation Technology Fact Sheet

Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.

Bower in a power wheelchair wearing a black shirt and tan pants smiling and driving with a head array

July 18, 2022

CPF LIVE! with Minnelly Vasquez: Mental Health

CPF Executive Director Rachel Byrne and Minnelly Vasquez, Licensed Clinical Social Worker with the Weinberg Cerebral Palsy Center at Columbia University Irving Medical Center, discuss mental health care for individuals with cerebral palsy and caregivers.

Minelli Vasques has curly brown hair, she is smiling and wearing glasses. She has a white shirt and a black blazer with her arms crossed in front of her.

July 13, 2022

Pediatric Bimanual Therapy: A Scoping Review of Patients, Methods, and Outcomes

Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.

July 5, 2022

CPF LIVE! with Gili Segall: Supporting Our Children and Ourselves

CPF Executive Director Rachel Byrne and psychologist Gili Segall, PhD discuss mental health during these constantly changing times and how to create strategies to help everyone in the family thrive.

Gili Segal has long brown hair and is wearing pink shirt

July 5, 2022

CPF LIVE! with Christina Smallwood: Behind the Scenes with Fifi and Mo

CPF Executive Director Rachel Byrne and Christina Smallwood talk about parenting, raising a child with cerebral palsy and helping her learn to advocate for herself.

Fifi is a little girl standing in front of her purple walker wearing a grey t-shirt with her hands fisted in the air. She is smiling and has brown hair. She is next to her mom who is wearing a white cowboy hat, dark glasses, has long blonde hair and is smiling wearing a grey shirt and jeans.

June 30, 2022

Caregiver Knowledge and Preferences for Gross Motor Function Information in Cerebral Palsy

This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.

June 29, 2022

Stability of the Gross Motor Function Classification System, Manual Ability Classification System, and Communication Function Classification System

The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.

June 29, 2022

Stability of the Gross Motor Function Classification System in Children and Adolescents with Cerebral Palsy: A retrospective cohort registry study

The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.

May 17, 2022

Episode 10: The Role of Physiatry and Neurosurgery in the Care of Cerebral Palsy at Gillette Children's

In this 2022 episode of "Let's Talk CP" host Jen Lyman talks with neurosurgeon, Dr. Debbie Song, and physiatrist, Dr. Marcie Ward about their role in the care of Cerebral Palsy at Gillette Children's.

Debbie Song has dark hair pulled back and is wearing a black turtle neck. She is standing next to Marie Ward who has long dark hair and is wearing a grey blazer over a black shirt.

April 27, 2022

CPF LIVE! with Lorene Janowski: OT at Home

CPF Executive Director Rachel Byrne and occupational therapist Lorene Janowski discuss OT at home.

Lorene has long brown hair and is smiling. She is wearing a tan top.

April 22, 2022

CPF LIVE! with Paulo Selber, MD: Gait Analysis

CPF Executive Director Rachel Byrne and Dr. Paulo Selber discuss the ins and outs of gait analysis for cerebral palsy.

Paulo Selber has short greyish brown hair and is smiling wearing a blue shirt, tie and blue blazer.

April 21, 2022

The Power of Wheels

Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.

Photo of David Stoner, wearing a blue shirt, sitting in his black wheel chair with a tree in the background.

April 20, 2022

CPF LIVE! with Mary Lauren Neel, MD: Life after the NICU

CPF Executive Director Rachel Byrne and Dr. Mary Lauren Neel, MD discuss Life after the NICU.

Mary Lauren has curly blond shoulder length hair and is wearing a white lab coat. She is smiling

April 13, 2022

CPF LIVE! with Chris Modlesky, PhD: Exercise, Fitness and Research

CPF Executive Director Rachel Byrne and Chris Modlesky, PhD discuss exercise, fitness, research, research funding and his current research.

Christopher Modleski has dark hair and is smiling wearing a white button down and grey blazer

March 29, 2022

Episode 9: The Ins and Outs of Powered Mobility with Dr. Lisa Kenyon

Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.

March 25, 2022

Congressional Briefing for Cerebral Palsy

On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.