Ataxia affects balance and depth perception. Children with ataxia will often have poor coordination and walk unsteadily with a wide-based gait.
The Dystonia Care Pathway was created in 2016 based on best available evidence and is currently under revision. This link will be updated accordingly. The goal of the these Care Pathways is to help Health Care Professionals understand the research evidence on the topic so that they can make clinical decisions for the care of the individual.
Plain Language Summaries are an excellent way to get a clear overview of clinical research. Our friends with Mac Keith Press and the AACPDM Community Council have worked together to choose articles that might be right for you.
The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.
CPF Executive Director Rachel Byrne and Minnelly Vasquez, Licensed Clinical Social Worker with the Weinberg Cerebral Palsy Center at Columbia University Irving Medical Center, discuss mental health care for individuals with cerebral palsy and caregivers.
Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.
CPF Executive Director Rachel Byrne and psychologist Gili Segall, PhD discuss mental health during these constantly changing times and how to create strategies to help everyone in the family thrive.
CPF Executive Director Rachel Byrne and Christina Smallwood talk about parenting, raising a child with cerebral palsy and helping her learn to advocate for herself.
This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.
The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.
The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.
CPF Executive Director Rachel Byrne and Jason Benetti talk about his hard work, misperceptions, resilience, and his experience with cerebral palsy.
CPF Executive Director Rachel Byrne and Xian Horn, author and disability advocate discuss breaking down stereotypes.
CPF Executive Director Rachel Byrne and Weinberg Cerebral Palsy Center social worker, Jan Moscowitz, discuss strategies for coping with anxiety and depression, especially during times of isolation.
In this 2022 episode of "Let's Talk CP" host Jen Lyman talks with neurosurgeon, Dr. Debbie Song, and physiatrist, Dr. Marcie Ward about their role in the care of Cerebral Palsy at Gillette Children's.
CPF Executive Director Rachel Byrne and occupational therapist Lorene Janowski discuss OT at home.
CPF Executive Director Rachel Byrne and Dr. Paulo Selber discuss the ins and outs of gait analysis for cerebral palsy.
CPF Executive Director Rachel Byrne and Dr. Mary Lauren Neel, MD discuss Life after the NICU.
CPF Executive Director Rachel Byrne and Chris Modlesky, PhD discuss exercise, fitness, research, research funding and his current research.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.
CPF Executive Director Rachel Byrne and Mary Gannotti, PhD, PT discuss pain across the lifespan in cerebral palsy.
Early powered mobility has been shown to improve cognition in children with multiple, complex disabilities.
In this new 2022 episode of "Let's Talk CP" host Cynthia Frisina talks with Dr. Tom Novacheck and Dr. Andrew Georgiadis from Gillette Children's about gait, gait analysis, and what makes Gillette Children's such a special place.
The purpose of this study is to explore the breast cancer screening experiences of women with CP with the aim of identifying factors that could improve screening rates for women with disabilities.