Welcome to That Mom With CP-a space created to celebrate and support mothers with cerebral palsy through shared stories, adaptive parenting tips, and honest conversations about self-care and disability.
For as long as I can remember, I dreamed of being a mama and for equally as long, I just couldn’t comprehend the dream coming true, for me. Yet, I had NO frame of reference or role models for mamas with CP.
Discover how living with cerebral palsy has made me a more patient, adaptable, and intentional mom—and why disability can be a strength, not a setback.
An honest, uplifting look at motherhood with CP — what I feared, what I learned, and how becoming a disabled mom became my greatest strength.
Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.
These instructional videos brought to you by Enable Ireland are designed to give families the tools to help teach children with ambulatory CP the skills needed to ride a bike with confidence.
In Episode 3 of Coffee Talk, Nathalie and Jen discuss their experiences with fitness for their sons with CP.
Ian "Two Guns" Cannon shares his story of overcoming adversity and empowerment through adaptive boxing.
Accessible Yoga Practices is a great weekly newsletter and downloadable yoga guide for those with disabilities and caregivers interested in practicing yoga, on your own terms.
This review explores how muscles adapt to various forms of exercise in children and adolescents with CP.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
Mobility technology can enhance the lives of young children with disabilities in ways parents often never consider. Learn about how it can help your child beyond getting from point A to point B!
Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).
This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.
Too often, people with disabilities are relegated to being passive when it comes to the arts.
Author summary on stakeholder perspectives of pediatric powered wheelchair standing devices.
NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.
Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!
Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.
Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.
RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.
Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.
Living with CP taught Dr. Kathleen Friel much about educating others about her disability and now about her life threatening diagnosis of Metastatic Breast Cancer.
The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.