Researchers studied the natural history of cerebral visual impairment (CVI) in children with cerebral palsy (CP) and identify which early visual signs or symptoms are associated with cognitive visual disorders (CVDs) at school age.
In my 30-year career as a social worker and therapist, I have seen many children, adults, couples and families face what seems impossible. There are some common characteristics with those who face impossible with fear and those who face it with hope.
For all of us, the idea of adjusting is so important in understanding ourselves, those around us and the kindness that can happen when offered with care and understanding.
As we end the year and move into the next, we ask how in the world, do we go into a whole new year, brave?
MEVU was initially developed for children with cerebral palsy. It is now being tested with a wider group of parents and caregivers. You can help by taking the MEVU Survey today!
Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
In this special episode from the AACPDM annual meeting, Belinda Deramore Denver talks about vision in CP and her current work to better understand how children use their vision to help intervene early and with the right interventions.
Eye movement desensitization and reprocessing (EMDR) therapy is a mental health treatment technique. This method involves moving your eyes a specific way while you process traumatic memories. EMDR's goal is to help you heal from trauma or other distressing life experiences.
On the days that having CP is challenging, it is extra important to take care of yourself, all those feelings and your body. When we can mention how we feel, then we figure out or manage what we need to feel better.
This research studied falls in ambulatory children and adults with CP specifically asking how often they’ve fallen, fall-related injuries experienced, circumstances around the fall, the level of fear or concern about future falls, and the extent to which they do or don’t avoid certain activities due to their concern about falling. This study sets a strong foundation for future fall research, quantifying the breadth and depth of the problem across a large spectrum of age and walking ability.
In this new series within Cerebral Palsy Health, Jen sits down with Nathalie Maitre, MD, PhD to talk about parenting, our shared experiences raising sons with CP and more!
This presentation from the 2023 AACPDM Community Forum presents and overview of the interactions between the types of Cerebral Palsy, Mental and Behavioral Health and various medications and strategies to treat challenging mental health disturbances.
Jerron Herman, dancer, actor, trainer and more describes how he moves with spastic hemiplegia...and it might just surprise you!
Dr. Tom Novacheck, of Gillette Children's, describes the characteristics of the 4 types of unilateral, otherwise known as hemiplegic gait, and how the use of clinical instrumented gait analysis can help with treatment decision making.
Dr. Tom Novacheck, Gillette Children's, describes what to look for in each of the 4 different gait patterns seen for those with bilateral cerebral palsy and considerations for each type.
Dr. Debbie Song, Gillette Children's, gives an overview of common neurosurgical procedures to address global tone in individuals with cerebral palsy.
Understanding different gait patterns is important because it can determine what interventions will potentially be the most effective.
CPF Executive Director Rachel Byrne and psychologist Gili Segall, PhD discuss mental health during these constantly changing times and how to create strategies to help everyone in the family thrive.
CPF Executive Director Rachel Byrne and Weinberg Cerebral Palsy Center social worker, Jan Moskowitz, discuss strategies for coping with anxiety and depression, especially during times of isolation.
In this 2022 episode of "Let's Talk CP" host Jen Lyman talks with neurosurgeon, Dr. Debbie Song, and physiatrist, Dr. Marcie Ward about their role in the care of Cerebral Palsy at Gillette Children's.
CPF Executive Director Rachel Byrne and Dr. Paulo Selber discuss the ins and outs of gait analysis for cerebral palsy.
In this new 2022 episode of "Let's Talk CP" host Cynthia Frisina talks with Dr. Tom Novacheck and Dr. Andrew Georgiadis from Gillette Children's about gait, gait analysis, and what makes Gillette Children's such a special place.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.