Dyskinesia is an umbrella term encompassing a range of different movements. These are all movements that can be out of your control. Dyskinesia is very common in cerebral palsy.
Dr. Bhooma Aravamuthan presents Understanding Dystonia: Diagnosis and Treatment at the 2020 AACPDM Community Forum. Moderated by Council Chair, Jen Lyman.
Medicaid Waivers, Katie Beckett or TEFRA are all forms of benefits that an "waive" medicaid financial restrictions for parents of children who have a developmental disability acquired prior to the age of three. Kidswaivers.org has provided a comprehensive, interactive website of all available medicaid waiver programs by State across the US.
NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.
Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!
This IEP Checklist should provide helpful support when preparing for, setting goals, maintaining communication and achieving student success!
A new school year means new teachers, a new grade, new friends, new goals and maybe even a new school. Our friends at Learning Disabilities Online have put together these helpful tips to help you and your child or teen transition back to school a little easier.
RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.
On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.
Good nutrition is critical for your child's healthy brain development. It's not uncommon for families to struggle getting enough food to eat. If you feel like you haven't had enough food to feed your whole family in the last month, please talk to someone. This is a common problem.
Pain in people with cerebral palsy is very common, and probably not evaluated frequently enough.
A lot of people with cerebral palsy will experience pain over the course of their life. Through better assessment we can provide better interventions, which will lead to a better quality of life.
The Winter Paralympics is a great opportunity to learn about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
Now you can receive a no-cost genetic test for you or your child sent directly to your home.
Setting up a Third Party-Special Needs trust as part of estate planning is essential if the individual with a disability is or may be eligible for means-tested government benefits. A properly set up Third Party Trust ensures that the funds left to the individual, whether through gift or inheritance, are not considered countable assets when applying for means tested benefits
A special needs trust is a written legal agreement that enables an individual with a disability to qualify or remain qualified for means tested government benefits, such as medicaid, SSI or even medicaid waivers.
Access2CRT is here to empower advocates with the information and resources needed to promote and protect access to Complex Rehab Technology (CRT) access for people with disabilities and Cerebral Palsy.
Understanding and managing healthcare and the healthcare system can be daunting for all of us. Attitudes of both providers and patients toward healthcare have experienced significant changes over the past few decades, shifting away from a focus on providers addressing problems as they arise, to more of a partnership and a shared decision-making process to maximize function, well-being, and reduce potential morbidities [1].
Wouldn’t it be great if inclusive, accessible playgrounds were in every community for all to enjoy? Although progress is being made in certain areas, there is a lot more work to be done to literally level the playing field and help communities and designers understand what makes an inclusive accessible playground and why they are important for people of all abilities.
LittleWins harnesses the power of community to empower people with disabilities with the tools they need to thrive! From buying, selling, and donating medical equipment and supplies, to obtaining needed information and connecting with others – LittleWins is the one-stop community resource for families, parents, caregivers, in-home nurses, and all people with disabilities.
Individuals with Cerebral Palsy frequently participate in Adaptive Sports and Therapeutic Recreation programs. Though there are often many similarities in programs and frequently the terms are used interchangeably, there are differences that are highlighted here.
As a mother and a pediatrician, I’ve both felt the strain of pandemic parenting directly and indirectly. I’ve made decisions about my own family and sending our kids to daycare and school, and I’ve stayed up worrying about how parents are supposed to make these difficult choices with so little support.
I suppose there has to be one silver lining that comes out of being sheltered in place for months on end (due to Covid-19): I’ve finally been catching up on sleep. The recommended nightly hours of sleep is between 7 and 9 hours . For me, getting a good night’s sleep has been the best way to regain a sense of control and ease during such unnerving times. Not only does sleep improve mood and
Spasticity is usually caused by central nervous system injuries, such as brain injuries or spinal cord injuries. Spasticity is a little different from stiffness.
