Setting up a Third Party-Special Needs trust as part of estate planning is essential if the individual with a disability is or may be eligible for means-tested government benefits. A properly set up Third Party Trust ensures that the funds left to the individual, whether through gift or inheritance, are not considered countable assets when applying for means tested benefits
In 2014 the Achieving a Better Life Experience Act was passed. The ABLE account is a tax-advantaged savings account for individuals with disabilities. The individual with the disability is the account owner and anyone can contribute to the account – the account beneficiary, family, friends, even a Special Needs Trust.
A special needs trust is a written legal agreement that enables an individual with a disability to qualify or remain qualified for means tested government benefits, such as medicaid, SSI or even medicaid waivers.
CPF Executive Director Rachel Byrne and Peter Trojic, professional dancer with the Heidi Latski dance Company in New York City, discuss dance and disability.
CPF Executive Director Rachel Byrne and Jocelyn Cohen, Vice President of Communications and Engagement at Cerebral Palsy Alliance Research Foundation discuss collaboration in research.
Breakthrough Parenting for Children with Special Needs challenges families and professionals to help children with special needs to reach their full potential by using a proven motivational, how-to approach.
An incredible story of Johnny Agar, born with cerebral palsy and whom doctors thought would never walk, overcoming the odds to compete in Ironman triathlons.
In this exhilarating and inspirational memoir, the first man with cerebral palsy to climb Mount Kilimanjaro and complete the brutal Ironman competition shares the exhilarating adventure that led to his achievements—redefining our ideas of normal and proving that life is never truly limited for any of us.
As a child, John Quinn had a dream of a naval career despite his affliction with cerebral palsy.
In this groundbreaking book, Dr. Karen Pape tells the story of how some children with early brain damage astounded everyone around them.
What is neuroplasticity? Is it possible to change your brain? Norman Doidge’s inspiring guide to the new brain science explains all of this and more.
Nineteen people from across the globe, ranging in age from twenty to seventy-plus, tell their stories of living and thriving in diverse fields — in sport, the arts, medicine, business and more. With refreshing frankness, they share their successes along with their struggles — grit is the one characteristic they all have in common.
Diagnosed with cerebral palsy as a child, Kyle Pease had grown up supporting his athlete brothers Brent and Evan from the sidelines. While his condition limited his ability to play sports, it didn’t dampen Kyle’s passion for them, nor did it stop the Pease family from including Kyle in various excursions. From rolling his wheelchair up Bridal Veil Falls in Yosemite National Park to zipping down Colorado snow slopes, there was never a dull moment with the Pease brothers. Where there was a wheel, there was a way to adventure.
Born premature Matt Levy was thrown into the world and given two choices: to sink or to swim. Beating all the odds, he emerged as a Paralympic Gold Medallist, public speaker, and a business manager–all due to a mindset shift he experienced fighting for life at the bottom.
How would you feel if you weren’t allowed to make decisions about your life? What if someone had the power to tell you where to live, who to spend time with, and what to do? What if that person had control of your money and health care? Isn't that hard to imagine?
Do you need a way to discuss Cerebral Palsy with your child, friends, family, or caregivers? Xander explains about cerebral palsy, what causes it, the 4 types, and how it affects him and his friends who also have cerebral palsy. He also shows how he is an important member of his family and how what HE can do MATTERS.
Access2CRT is here to empower advocates with the information and resources needed to promote and protect access to Complex Rehab Technology (CRT) access for people with disabilities and Cerebral Palsy.
Understanding and managing healthcare and the healthcare system can be daunting for all of us. Attitudes of both providers and patients toward healthcare have experienced significant changes over the past few decades, shifting away from a focus on providers addressing problems as they arise, to more of a partnership and a shared decision-making process to maximize function, well-being, and reduce potential morbidities [1].
We rely on assistive technology for everything from holding utensils better to using a complex communication device. Makers Making Change is helping to create both custom and affordable assistive tech for all abilities and needs.
LittleWins harnesses the power of community to empower people with disabilities with the tools they need to thrive! From buying, selling, and donating medical equipment and supplies, to obtaining needed information and connecting with others – LittleWins is the one-stop community resource for families, parents, caregivers, in-home nurses, and all people with disabilities.
Judy Heumann’s candid, intimate, and irreverent memoir about resistance to exclusion, invites readers to imagine and make real a world in which we all belong.
Author Andrew Soloman proposes that being exceptional is at the core of the human condition—that difference is what unites us.
Written by cerebral palsy specialists, Drs. Peter Rosenbaum and Lewis Rosenbloom, this book gives a comprehensive, yet accessible and readable overview of cerebral palsy across the lifespan.
Comedian Zach Anner opens his frank and devilishly funny book, If at Birth You Don't Succeed, with an admission: he botched his own birth. Two months early, underweight and under-prepared for life, he entered the world with cerebral palsy and an uncertain future.
Written for both clinicians and families, this comprehensive guide to complex cerebral palsy utilizes the ICF to organize and guide the subject matter in order to assist both clinicians and families to maximize participation for those who are impacted more significantly by cerebral palsy.