In Episode 5 of Coffee Talk, Nathalie and Jen discuss preventive care and vaccines.
Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.
These instructional videos brought to you by Enable Ireland are designed to give families the tools to help teach children with ambulatory CP the skills needed to ride a bike with confidence.
In Episode 3 of Coffee Talk, Nathalie and Jen discuss their experiences with fitness for their sons with CP.
Ian "Two Guns" Cannon shares his story of overcoming adversity and empowerment through adaptive boxing.
Accessible Yoga Practices is a great weekly newsletter and downloadable yoga guide for those with disabilities and caregivers interested in practicing yoga, on your own terms.
Parálisis Cerebral Respuestas (Cerebral Palsy Answers) is a podcast in Spanish, that seeks to answer all your questions about Cerebral Palsy! Join me every week for in-depth interviews with top specialists in Cerebral Palsy and individuals living with Cerebral Palsy to get the answers!
This review explores how muscles adapt to various forms of exercise in children and adolescents with CP.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
Too often, people with disabilities are relegated to being passive when it comes to the arts.
In cerebral palsy (CP) muscles are often shortened so much that they restrict joint range of motion and the muscles themselves are weak. Thus, ‘shortness’ and ‘weakness’ are two important needs that clinicians must address.
The American Academy of Pediatrics has updated its recommendations for Primary Care Providers to provide a "Medical Home" for children and youth with cerebral palsy. This comprehensive update gives primary care pediatricians the guidance they need to address the many needs that children and youth with CP experience and coordinate care across disciplines. The Cerebral Palsy Foundation has created a checklist to help guide you in raising your child with CP to living the healthiest life possible and ensure that you and your pediatrician are addressing all of your concerns.
Plain Language Summaries are an excellent way to get a clear overview of clinical research. Our friends with Mac Keith Press and the AACPDM Community Council have worked together to choose articles that might be right for you.
The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.
Our educational series continues with this virtual event featuring a multi-disciplinary panel discussion on exercise and physical activity and its impacts on spasticity and function.
The Winter Paralympics is a great opportunity to learn about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
CPF Executive Director Rachel Byrne and physical therapist, Jennifer Jezequel, PT, discuss exercise and fitness for children with Cerebral Palsy.
CPF Executive Director Rachel Byrne and Byron Lai, PhD, discuss exercise and fitness for individuals with Cerebral Palsy.
CPF Executive Director Rachel Byrne and Peter Rosenbaum, MD, developmental pediatrician and CPF Scientific Advisory Council member discuss how current thinking about Cerebral Palsy has changed over time with advances in research.
Understanding and managing healthcare and the healthcare system can be daunting for all of us. Attitudes of both providers and patients toward healthcare have experienced significant changes over the past few decades, shifting away from a focus on providers addressing problems as they arise, to more of a partnership and a shared decision-making process to maximize function, well-being, and reduce potential morbidities [1].
Wouldn’t it be great if inclusive, accessible playgrounds were in every community for all to enjoy? Although progress is being made in certain areas, there is a lot more work to be done to literally level the playing field and help communities and designers understand what makes an inclusive accessible playground and why they are important for people of all abilities.
Individuals with Cerebral Palsy frequently participate in Adaptive Sports and Therapeutic Recreation programs. Though there are often many similarities in programs and frequently the terms are used interchangeably, there are differences that are highlighted here.
Frame Running is becoming increasingly popular as a recreational and competitive sport for individuals with cerebral palsy across all GMFCS levels. Tune in to learn more!
On this episode with Dr. Amy Bailes, we discuss the Gross Motor Functional Classification System (the GMFCS), the Gross Motor Functional Measure (the GMFM), and the corresponding motor curves. The GMFCS is an important classification system that is relatively easy to understand and it helps create a shared language and framework for understanding a person with CP’s physical function. This can be very helpful for patients, families and providers of all sorts, especially as it relates to both and acceptance and understanding of the diagnosis and family-centered shared decision making.
