| Cerebral Palsy Foundation

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January 17, 2024

2024 Summer Camp Guide

Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.

December 7, 2023

Frame Running Clubs in North America

Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!

A teenager in a black jacket is using a frame runner to run around a track

November 27, 2023

Episode 11: Participation with Nathan Rosenberg, MD

Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.

Nathan Rosenberg has dark hair and glasses. He is smiling and wearing a pink shirt with a tie

September 28, 2023

NIH Designates People with Disabilities as a Population with Health Disparities

People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities.

July 12, 2023

Adaptive Sports for Athletes with Cerebral Palsy

Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.

Male and Female athletes wearing blue University of Michigan shirts holding award medals

March 3, 2023

Cerebral Palsy Research Act

The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here:

January 11, 2023

2023 Appropriations Act

The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!

August 29, 2022

NCART Standing Device Funding Guide

NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.

Image of 4 different types of supportive standing devices

August 16, 2022

Evidence and Guidance for Support for Standing

Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.

August 16, 2022

Complex Rehabilitation Technology Fact Sheet

Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.

Bower in a power wheelchair wearing a black shirt and tan pants smiling and driving with a head array

August 16, 2022

RESNA (Rehab Engineering and Assistive Technology Society of North America)

RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.

August 16, 2022

Stand on Demand to Increase Participation

Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.

Bower wearing a green shirt and tan pants standing in his wheelchair smiling with his golden retriever everest

March 29, 2022

Episode 9: The Ins and Outs of Powered Mobility with Dr. Lisa Kenyon

Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.

March 25, 2022

Congressional Briefing for Cerebral Palsy

On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.

February 24, 2022

Winter Paralympic Sports for Athletes with Cerebral Palsy

The Winter Paralympics is a great opportunity to learn about the many adaptive recreational and competitive sports for individuals with cerebral palsy.

Young person wearing a red and white parka with blue pants and a black helmet snowboarding

February 7, 2022

Episode 9: Meet the Gait Lab Experts at Gillette Children's

In this new 2022 episode of "Let's Talk CP" host Cynthia Frisina talks with Dr. Tom Novacheck and Dr. Andrew Georgiadis from Gillette Children's about gait, gait analysis, and what makes Gillette Children's such a special place.

Dr. Georgiadis on left with short dark hair and glass wearing a pink tie, blue shirt and dark jacket, next to Dr. Novachek with dark hair and glassed wearing a blue shirt and maroon tie.

October 27, 2021

Episode 8: Cerebral Palsy Health. Disability and Employment with Sarah Storck and David Stoner

Individuals with disabilities have opportunities to work, receive employment training and coaching, benefits counseling and save money without losing means tested benefits. This podcast discusses these options.

Sarah Storck on left with long blond hair wearing glasses and a brown shirt, David Stoner on right with dark hair in a wheelchair wearing a blue shirt

July 27, 2021

Personal Care Attendant/ Teacher Assistant For School Environment

Students with disabilities often need extra support throughout the day to access their environment, the academic materials, and learn alongside their peers. A Personal Care Attendant in the school setting is often utilized to support the students needs.

Graphic of a teacher in front of a chalk board with a child in a wheelchair observing

July 27, 2021

Personal Care Attendant Job Description for Child/Teen

Children and teens with cerebral palsy and other disabilities may need the assistance of an individual who has a background in healthcare and the skills to provide the services essential to quality care.

Photo of two young men in blue shirts sitting next to each other outdoors, one is in a wheelchair wearing a Mardi Gras mask and waving.

July 21, 2021

Sample Personal Care Attendant Employment Agreement

An employment agreement spells out the rules, rights and responsibilities for both the Personal Care Attendant (the employee) and the individual with cerebral palsy or family who is hiring the Personal Care Attendant.

June 17, 2021

Can Everyone Play? Helpful Tips for Creating Inclusive Accessible Playgrounds

Wouldn’t it be great if inclusive, accessible playgrounds were in every community for all to enjoy? Although progress is being made in certain areas, there is a lot more work to be done to literally level the playing field and help communities and designers understand what makes an inclusive accessible playground and why they are important for people of all abilities.

June 4, 2021

Little Wins

LittleWins harnesses the power of community to empower people with disabilities with the tools they need to thrive! From buying, selling, and donating medical equipment and supplies, to obtaining needed information and connecting with others – LittleWins is the one-stop community resource for families, parents, caregivers, in-home nurses, and all people with disabilities.

June 2, 2021

Adaptive Sports, Therapeutic Recreation & Other Frequently Asked Questions

Individuals with Cerebral Palsy frequently participate in Adaptive Sports and Therapeutic Recreation programs. Though there are often many similarities in programs and frequently the terms are used interchangeably, there are differences that are highlighted here.

Individuals in wheelchairs participating in a fitness class

May 21, 2021

Episode 8: Growing Up Kutcher. Michael Kutcher Part 2

Don't miss Part 2 of this very special podcast series when podcast host Cynthia Frisina dives deeper with Michael Kutcher into his life growing up with cerebral palsy, his "coming of age" as the twin brother of actor Christopher "Ashton" Kutcher, and what Michael is doing now with his new "diffability" concept and continued advocacy work on behalf of people with disabilities and organ transplants recently featured in Forbes Magazine https://www.forbes.com/sites/karlmoore/2021/07/08/michael-kutcher-on-turning-obstacles-into-opportunities/?sh=6ed0e70f722f

Michael Kutcher seated wearing a dark blazer with light shirt and dark rimmed glasses

May 17, 2021

Episode 6: Cerebral Palsy Health. Theresa Sukal Moulton, PT, DPT, PhD and David Black: Frame Running an Adaptive Recreational Sport for Individuals with Cerebral Palsy

Frame Running is becoming increasingly popular as a recreational and competitive sport for individuals with cerebral palsy across all GMFCS levels. Tune in to learn more!

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