On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.
March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead.
CPF Executive Director Rachel Byrne and Mary Gannotti, PhD, PT discuss pain across the lifespan in cerebral palsy.
In the sequel to best selling "Out of My Mind" heroine Melody a year older, armed with confidence and is ready for adventure!
Pediatric critical care physician and ethicist, Dr. Jane Lee was accustomed to caring for children with severe disabilities and felt comfortable helping families navigate the "system". That is until she has her own complicated delivery leaves her second child with a severe brain injury, she finds that everything she learned about disability and personhood as a physician and ethicist is no help as a parent.
CPF Executive Director Rachel Byrne and Lily Collison with Kara Buckley and individuals from the book Pure Grit, talk about what it takes to be successful with a disability.
CPF Executive Director Rachel Byrne talks with Lily Collison and her son Tommy about their journey with Cerebral Palsy, Lily's new book, Tommy's work and much more.
CPF Executive Director Rachel Byrne and Peter Trojic, professional dancer with the Heidi Latski dance Company in New York City, discuss dance and disability.
CPF Executive Director Rachel Byrne and Jocelyn Cohen, Vice President of Communications and Engagement at Cerebral Palsy Alliance Research Foundation discuss collaboration in research.
CPF Executive Director Rachel Byrne and physical therapist, Jennifer Jezequel, PT, discuss exercise and fitness for children with Cerebral Palsy.
CPF Executive Director Rachel Byrne and Byron Lai, PhD, discuss exercise and fitness for individuals with Cerebral Palsy.
CPF Executive Director Rachel Byrne and speech therapist, Kristen Allison, PhD, CCC-SLP discuss communication and Cerebral Palsy.
CPF Executive Director Rachel Byrne and Peter Rosenbaum, MD, developmental pediatrician and CPF Scientific Advisory Council member discuss how current thinking about Cerebral Palsy has changed over time with advances in research.
Breakthrough Parenting for Children with Special Needs challenges families and professionals to help children with special needs to reach their full potential by using a proven motivational, how-to approach.
An incredible story of Johnny Agar, born with cerebral palsy and whom doctors thought would never walk, overcoming the odds to compete in Ironman triathlons.
In this exhilarating and inspirational memoir, the first man with cerebral palsy to climb Mount Kilimanjaro and complete the brutal Ironman competition shares the exhilarating adventure that led to his achievements—redefining our ideas of normal and proving that life is never truly limited for any of us.
As a child, John Quinn had a dream of a naval career despite his affliction with cerebral palsy.
In Walking with Friends, D.J. Gregory, a thirty-yearold who has cerebral palsy, describes his year of traveling with the PGA tour and walking every course.
In this groundbreaking book, Dr. Karen Pape tells the story of how some children with early brain damage astounded everyone around them.
What is neuroplasticity? Is it possible to change your brain? Norman Doidge’s inspiring guide to the new brain science explains all of this and more.
Nineteen people from across the globe, ranging in age from twenty to seventy-plus, tell their stories of living and thriving in diverse fields — in sport, the arts, medicine, business and more. With refreshing frankness, they share their successes along with their struggles — grit is the one characteristic they all have in common.
Diagnosed with cerebral palsy as a child, Kyle Pease had grown up supporting his athlete brothers Brent and Evan from the sidelines. While his condition limited his ability to play sports, it didn’t dampen Kyle’s passion for them, nor did it stop the Pease family from including Kyle in various excursions. From rolling his wheelchair up Bridal Veil Falls in Yosemite National Park to zipping down Colorado snow slopes, there was never a dull moment with the Pease brothers. Where there was a wheel, there was a way to adventure.
Born premature Matt Levy was thrown into the world and given two choices: to sink or to swim. Beating all the odds, he emerged as a Paralympic Gold Medallist, public speaker, and a business manager–all due to a mindset shift he experienced fighting for life at the bottom.
"Do you know what grit means? Well, my mom says I have it. Having grit means you keep working toward your goal even when it's hard. Someone who has grit is fearless and unstoppable." - Frankie
How would you feel if you weren’t allowed to make decisions about your life? What if someone had the power to tell you where to live, who to spend time with, and what to do? What if that person had control of your money and health care? Isn't that hard to imagine?