| Cerebral Palsy Foundation

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September 28, 2023

NIH Designates People with Disabilities as a Population with Health Disparities

People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities.

June 24, 2023

Can Genetic Testing Help You or Your Child?

If you or your child have cerebral palsy where the cause is unclear, there are no-cost genetic tests and no-cost genetic counseling that can help answer some of these questions.

Young girl and woman smiling while looking at a tablet

March 3, 2023

Cerebral Palsy Research Act

The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here:

January 11, 2023

2023 Appropriations Act

The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!

September 6, 2022

Children's Waivers and More

Medicaid Waivers, Katie Beckett or TEFRA are all forms of benefits that an "waive" medicaid financial restrictions for parents of children who have a developmental disability acquired prior to the age of three. Kidswaivers.org has provided a comprehensive, interactive website of all available medicaid waiver programs by State across the US.

August 29, 2022

NCART Standing Device Funding Guide

NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.

Image of 4 different types of supportive standing devices

August 23, 2022

IEP Checklist

This IEP Checklist should provide helpful support when preparing for, setting goals, maintaining communication and achieving student success!

Graphic of a teacher in front of a chalk board with a child in a wheelchair observing

August 16, 2022

Evidence and Guidance for Support for Standing

Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.

August 16, 2022

RESNA (Rehab Engineering and Assistive Technology Society of North America)

RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.

February 2, 2022

Can Genetic Testing Help You or Your Child?

Now you can receive a no-cost genetic test for you or your child sent directly to your home.

October 29, 2021

BREAST HEALTH: Optimizing Mammography Services for Women with Disabilties

Breast cancer is a major cause of mortality in women. Screening has been known to improve early detection for early treatment. Women with disabilities face many physical and attitudinal barriers to mammogram screenings. This webinar has been created to address the educational needs of technologists and to give women with cp and disabilities visual accurate information about the procedure.

October 27, 2021

It's OK to ask!

It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions

A young woman sits in front of a brick wall in a wheel chair smiling off to the right. Drawn pink squiggles surround her.

July 27, 2021

Personal Care Attendant/ Teacher Assistant For School Environment

Students with disabilities often need extra support throughout the day to access their environment, the academic materials, and learn alongside their peers. A Personal Care Attendant in the school setting is often utilized to support the students needs.

July 27, 2021

Personal Care Attendant Job Description for Child/Teen

Children and teens with cerebral palsy and other disabilities may need the assistance of an individual who has a background in healthcare and the skills to provide the services essential to quality care.

Photo of two young men in blue shirts sitting next to each other outdoors, one is in a wheelchair wearing a Mardi Gras mask and waving.

July 27, 2021

Personal Care Attendant Job Description for an Adult

Personal Care Attendants for adults with cerebral palsy and other disabilities provide a variety of essential functions that ensure safety, health, wellbeing and overall impact quality of life.

Photo of woman wearing a blue shirt embracing a woman in a wheelchair

July 21, 2021

Sample Personal Care Attendant Employment Agreement

An employment agreement spells out the rules, rights and responsibilities for both the Personal Care Attendant (the employee) and the individual with cerebral palsy or family who is hiring the Personal Care Attendant.

July 8, 2021

A Resource Guide to Understanding Cerebral Palsy- Commentary on Collaboration to Support Health Literacy and Shared Decision Making

Understanding and managing healthcare and the healthcare system can be daunting for all of us. Attitudes of both providers and patients toward healthcare have experienced significant changes over the past few decades, shifting away from a focus on providers addressing problems as they arise, to more of a partnership and a shared decision-making process to maximize function, well-being, and reduce potential morbidities [1].

Collage of individuals and families with cerebral palsy wearing green t-shirts that say go green for CP

July 1, 2020

Sexual and reproductive health guideline for providers treating young women with cerebral palsy.

This fact sheet is a sexual and reproductive health guideline for providers treating young women with cerebral palsy.

July 1, 2020

Preparing For Your OB/GYN Appointment Brochure

5 things for women with Cerebral Palsy to consider when preparing for their OB/GYN appointment

An image of three cartoon people on a pink background

July 1, 2020

A sexual and reproductive health guideline for young women with cerebral palsy

It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions

An image of three people on a pink and purple background

July 1, 2020

Gynecological Care Patient Brochure

This fact sheet has been created for women with cerebral palsy to provide answers to some common questions about CP, disability, and gynecological care.

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