Dr. Golda Milo-Manson discusses common sleep issues and solutions in cerebral palsy.
In Episode 2 of Coffee Talk, Nathalie and Jen discuss their experiences with sleep as it has impacted their sons and their lives.
Early diagnosis begins with a medical history and involves using neuroimaging, standardized neurological, and standardized motor assessments that indicate congruent abnormal findings indicative of cerebral palsy. Clinicians should understand the importance of prompt referral to diagnostic-specific early intervention to optimize infant motor and cognitive plasticity, prevent secondary complications, and enhance caregiver well-being.
Mobility technology can enhance the lives of young children with disabilities in ways parents often never consider. Learn about how it can help your child beyond getting from point A to point B!
If you or your child have cerebral palsy where the cause is unclear, there are no-cost genetic tests and no-cost genetic counseling that can help answer some of these questions.
This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).
This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.
Author summary on stakeholder perspectives of pediatric powered wheelchair standing devices.
NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.
Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!
Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.
Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.
RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.
Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.
This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.
The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.
The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.
Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.
Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.
Early powered mobility has been shown to improve cognition in children with multiple, complex disabilities.
Access2CRT is here to empower advocates with the information and resources needed to promote and protect access to Complex Rehab Technology (CRT) access for people with disabilities and Cerebral Palsy.
We rely on assistive technology for everything from holding utensils better to using a complex communication device. Makers Making Change is helping to create both custom and affordable assistive tech for all abilities and needs.
LittleWins harnesses the power of community to empower people with disabilities with the tools they need to thrive! From buying, selling, and donating medical equipment and supplies, to obtaining needed information and connecting with others – LittleWins is the one-stop community resource for families, parents, caregivers, in-home nurses, and all people with disabilities.
A parent's perspective as she recalls the moment she realized that a wheelchair meant freedom for her son and not a barrier to his progress.
Sleep is important to all of us, but it's especially important for infants. When infants go to sleep, they start to create neural networks about what they've been learning during the day. It's estimated that as many as one in five children with disabilities have a sleep disorder, and that's higher than the rate of typically-developing children. Finding sleep interventions for these children is incredibly important so they can lay down their brain networks and continue to learn during their early childhood years.
