Making informed decisions about care and treatment for cerebral palsy (CP) can be overwhelming, especially with the vast amount of medical research available. Through this guide, we aim to help you better understand the types of research you may encounter and provides practical tips for evaluating studies relevant to CP.
Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.
In Episode 5 of Coffee Talk, Nathalie and Jen discuss preventive care and vaccines.
Cynthia Frisina discusses the purpose and importance of Cerebral Palsy Awareness Month and Day to bring people together to advocate for better healthcare, research advancements, funding and more those with CP and their families.
Dental Professors, Dr. Erica Caffrey, DDS and Dr. Sydnee Chavis, DMD, MS discuss oral health and dentistry across the lifespan.
Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.
In Episode 4 of Coffee Talk, Nathalie and Jen discuss research and clinical trials.
In Episode 3 of Coffee Talk, Nathalie and Jen discuss their experiences with fitness for their sons with CP.
Dr. Golda Milo-Manson discusses common sleep issues and solutions in cerebral palsy.
In Episode 2 of Coffee Talk, Nathalie and Jen discuss their experiences with sleep as it has impacted their sons and their lives.
In this new series within Cerebral Palsy Health, Jen sits down with Nathalie Maitre, MD, PhD to talk about parenting, our shared experiences raising sons with CP and more!
Cephable is a free software for individuals that adapts to the user, enabling technology control through voice, face, and motion for a more accessible digital experience.
Do you or your child have movements that are difficult to control? Is your mobility and function impacted by abnormal movements or do these movements cause pain? If so, you or your child may have Dyskinesia. If you want to learn more, including how it is treated, don't miss this educational Town Hall with experts Dr. Heather Riordan, from Kennedy Krieger Institute, and Dr. Michael Kruer, from Phoenix Children's.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
Founded by Susan Banks and Courtney Craven, Can I Play that? (CIPT) has grown from a hobby site to a destination for gamers and developers alike that provides all forms of accessibility information on video games and the industry.
CPF Executive Director Rachel Byrne and Dr. Heather Riordan, Director of the Phelps Center for Cerebral Palsy at the Kennedy Krieger Institute discuss dyskinesia.
Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
Assistive technology comes in all shapes and sizes to help adapt your environment to best meet your needs. From tools to help you turn on the lights to high tech games to help you participate with your peers, AT can equalize the playing field!
Dr. Nathalie Maitre discusses the CPF Early Detection and Intervention Network and helps us to understand how babies learn, how CP impacts the developing brain, and early intervention strategies that can help.
Do you or your child have movements that are difficult to control? Is your mobility and function impacted by abnormal movements and cause pain? If so, you or your child may have Dyskinesia. If you want to learn more, including how it is treated, please join us on for a new educational Town Hall with experts Dr. Susan Biffl, from Rady Children's Hospital, and Dr. Mark Gormley, from Gillette Children's.
Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.
NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.
Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.
Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.