Bring this checklist to pre-op visits. Check off items as you discuss them with your child’s surgeon, pediatrician, and anesthesia team.
This one-page guide helps families know what to expect and what to share with the care team before surgery.
Preparing those with CP for orthopedic surgery is an important step to ensure the best outcomes. The following research review highlights important steps and considerations.
I began thinking about this in regards to CP Awareness Day a bit differently. If we think about even the name, Cerebral Palsy Awareness, there are so many things I imagine you would like others to be aware of, as caregivers and Cerebral Palsy warriors. What does awareness mean to each of us, personally?
In 2025, there are thousands of reels, social media accounts and testaments to the badassery that is required to live with CP. And though the world still has a long way to go, the pride, wholeness and strength of this community never ceases to amaze me.
CP describes a spectrum of conditions that affects individuals in many different ways. Your care team may use the term GMFCS which stands for Gross Motor Function Classification Scale and is used to describe what mobility aids your child may need to complete certain tasks.
Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.
In Episode 5 of Coffee Talk, Nathalie and Jen discuss preventive care and vaccines.
March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead.
Cynthia Frisina discusses the purpose and importance of Cerebral Palsy Awareness Month and Day to bring people together to advocate for better healthcare, research advancements, funding and more those with CP and their families.
The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research.
Parálisis Cerebral Respuestas (Cerebral Palsy Answers) is a podcast in Spanish, that seeks to answer all your questions about Cerebral Palsy! Join me every week for in-depth interviews with top specialists in Cerebral Palsy and individuals living with Cerebral Palsy to get the answers!
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
An update to the current understanding and potential of stem cell therapies for CP.
Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.
People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities.
The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here:
In cerebral palsy (CP) muscles are often shortened so much that they restrict joint range of motion and the muscles themselves are weak. Thus, ‘shortness’ and ‘weakness’ are two important needs that clinicians must address.
It is important to understand how spasticity can impact the muscles and the know what treatments are available to help.
The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!
Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.
The American Academy of Pediatrics has updated its recommendations for Primary Care Providers to provide a "Medical Home" for children and youth with cerebral palsy. This comprehensive update gives primary care pediatricians the guidance they need to address the many needs that children and youth with CP experience and coordinate care across disciplines. The Cerebral Palsy Foundation has created a checklist to help guide you in raising your child with CP to living the healthiest life possible and ensure that you and your pediatrician are addressing all of your concerns.
Plain Language Summaries are an excellent way to get a clear overview of clinical research. Our friends with Mac Keith Press and the AACPDM Community Council have worked together to choose articles that might be right for you.
On Thursday, March 24th, 2022, the Cerebral Palsy Foundation hosted the first ever Cerebral Palsy Congressional Briefing with a panel of physicians, patient and self advocates.
CPF Executive Director Rachel Byrne talks with Lily Collison and her son Tommy about their journey with Cerebral Palsy, Lily's new book, Tommy's work and much more.
