MEVU was initially developed for children with cerebral palsy. It is now being tested with a wider group of parents and caregivers. You can help by taking the MEVU Survey today!
Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
In this special episode from the AACPDM annual meeting, Belinda Deramore Denver talks about vision in CP and her current work to better understand how children use their vision to help intervene early and with the right interventions.
Download this guidebook before you meet with an architect to make the most out of your new home design!
Technology for people with disabilities is advancing at an unprecedented pace, with artificial intelligence (AI), machine learning, and mainstream tech giants leading the way in accessibility innovation. Here’s a look at the most exciting developments, highlighting recent announcements from Apple, Microsoft, and the growing impact of AI-based solutions.
This recent study found that over half of children and young people with Cerebral Palsy have more than one movement disorder, which is more common than previously thought.
Dr. Heather Riordan explains how different motor types can occur at the same time in some people and how to decide what to treat first.
Neurologist and movement disorder specialist, Heather Riordan, MD, describes the Chorea in Cerebral Palsy and what to do if it is impacting your function.
Creating opportunities that enable play in order to combat social isolation, foster inclusive communities, and improve the quality of life for people with disabilities.
Our mission is to empower people with disabilities to live their best life! We do this by showcasing adaptive products.
Cephable is a free software for individuals that adapts to the user, enabling technology control through voice, face, and motion for a more accessible digital experience.
Do you or your child have movements that are difficult to control? Is your mobility and function impacted by abnormal movements or do these movements cause pain? If so, you or your child may have Dyskinesia. If you want to learn more, including how it is treated, don't miss this educational Town Hall with experts Dr. Heather Riordan, from Kennedy Krieger Institute, and Dr. Michael Kruer, from Phoenix Children's.
Founded by Susan Banks and Courtney Craven, Can I Play that? (CIPT) has grown from a hobby site to a destination for gamers and developers alike that provides all forms of accessibility information on video games and the industry.
CPF Executive Director Rachel Byrne and Dr. Heather Riordan, Director of the Phelps Center for Cerebral Palsy at the Kennedy Krieger Institute discuss dyskinesia.
Assistive technology comes in all shapes and sizes to help adapt your environment to best meet your needs. From tools to help you turn on the lights to high tech games to help you participate with your peers, AT can equalize the playing field!
The Dyskinetic Cerebral Palsy Functional Impact Scale is a new tool useful measuring the functional impact of dyskinesia on children's movements and postures and the perceived impact of dyskinesia on daily activities. It can can help identify priorities for intervention.
This systematic review looks at all available evidence for pharmacological/neurosurgical interventions for managing dystonia in individuals with cerebral palsy to inform the AACPDM care pathway.
Hypotonic CP, also known as hypotonia, is a form of cerebral palsy that causes low muscle tone. In other words, the muscles are overly relaxed and your child may feel floppy.
Mixed types of CP refer to symptoms that don’t correspond to any single type of CP but are a mix of types. For example, a child with mixed CP may have some muscles that are too tight and others that are too relaxed.
Ataxia affects balance and depth perception. Children with ataxia will often have poor coordination and walk unsteadily with a wide-based gait.
Dyskinesia is an umbrella term encompassing a range of different movements. These are all movements that can be out of your control. Dyskinesia is very common in cerebral palsy.
Dr. Bhooma Aravamuthan presents Understanding Dystonia: Diagnosis and Treatment at the 2020 AACPDM Community Forum. Moderated by Council Chair, Jen Lyman.
The Dystonia Care Pathway was updated in 2024 based on best available evidence. The goal of the these Care Pathways is to help Health Care Professionals understand the research evidence on the topic so that they can make clinical decisions for the care of the individual.