"Do you know what grit means? Well, my mom says I have it. Having grit means you keep working toward your goal even when it's hard. Someone who has grit is fearless and unstoppable." - Frankie
How would you feel if you weren’t allowed to make decisions about your life? What if someone had the power to tell you where to live, who to spend time with, and what to do? What if that person had control of your money and health care? Isn't that hard to imagine?
Graham Hale Gardner died before turning twenty-three and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds.
Do you need a way to discuss Cerebral Palsy with your child, friends, family, or caregivers? Xander explains about cerebral palsy, what causes it, the 4 types, and how it affects him and his friends who also have cerebral palsy. He also shows how he is an important member of his family and how what HE can do MATTERS.
Understanding and managing healthcare and the healthcare system can be daunting for all of us. Attitudes of both providers and patients toward healthcare have experienced significant changes over the past few decades, shifting away from a focus on providers addressing problems as they arise, to more of a partnership and a shared decision-making process to maximize function, well-being, and reduce potential morbidities [1].
A bold and contemporary discourse of the intersection of disability studies and queer studies
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.
We rely on assistive technology for everything from holding utensils better to using a complex communication device. Makers Making Change is helping to create both custom and affordable assistive tech for all abilities and needs.
Judy Heumann’s candid, intimate, and irreverent memoir about resistance to exclusion, invites readers to imagine and make real a world in which we all belong.
Author Andrew Soloman proposes that being exceptional is at the core of the human condition—that difference is what unites us.
Written by cerebral palsy specialists, Drs. Peter Rosenbaum and Lewis Rosenbloom, this book gives a comprehensive, yet accessible and readable overview of cerebral palsy across the lifespan.
Written for fifth and sixth graders, this is the story of a young girl with cerebral palsy who utilizes a communication device to interact and participate.
Comedian Zach Anner opens his frank and devilishly funny book, If at Birth You Don't Succeed, with an admission: he botched his own birth. Two months early, underweight and under-prepared for life, he entered the world with cerebral palsy and an uncertain future.
Written for both clinicians and families, this comprehensive guide to complex cerebral palsy utilizes the ICF to organize and guide the subject matter in order to assist both clinicians and families to maximize participation for those who are impacted more significantly by cerebral palsy.
For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows.
On this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be helpful for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does.
On this episode with Dr. Amy Bailes, we discuss the Gross Motor Functional Classification System (the GMFCS), the Gross Motor Functional Measure (the GMFM), and the corresponding motor curves. The GMFCS is an important classification system that is relatively easy to understand and it helps create a shared language and framework for understanding a person with CP’s physical function. This can be very helpful for patients, families and providers of all sorts, especially as it relates to both and acceptance and understanding of the diagnosis and family-centered shared decision making.
In this first episode, listeners will meet the host, Jen, learn about her background, her son, Bower, and the reason for creating this podcast. Enjoy!
An empowering and evidence-based guide for living a full life with spastic diplegia–bilateral cerebral palsy.
Our “Let’s Talk CP” podcast series kicks off with a great conversation about what questions to ask your child’s clinician when your child has cerebral palsy. How should you prepare for a medical appointment? What questions should you ask? Should you get a second opinion? Join Cerebral Palsy Foundation host, Cynthia Frisina as she shares candid talk, lessons learned and great advice with fellow moms, Wendy Sullivan and Jennifer Lyman. This episode is made possible with the support of Ipsen Biopharmaceuticals.
As an undergraduate student in a major metropolitan city like NYC, the thought of finding a place to live after graduation was very daunting. I didn’t have many options for accessible dorms on campus, so I could only wonder how much more difficult it’d be to find a “real-life adult” apartment that I could afford as a 20-something-year-old. My apartment search began one year earlier than
Welcome! The Cerebral Palsy Foundation is connecting the Cerebral Palsy community one podcast at a time with “Let’s Talk CP” - the new podcast series bringing you education, conversation, support and much more on a variety of topics. Join Jason Benetti, White Sox and ESPN sports announcer, and friends, as we get real with families, clinicians and researchers asking the questions you want to know about your CP journey. We’re all in this together.
The historic Americans with Disabilities Act (ADA) was signed into law on July 26, 1990, by President George H.W. Bush — marking this month its 30th anniversary. The ADA was the country’s first-ever comprehensive civil rights law for people with disabilities, offering protection against discrimination and imposing accessibility requirements in workplaces and the public. The passage of this law was
This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics, exercise and fitness, adaptive sports, accessibility, and new trends.
Cerebral palsy refers to a group of conditions that are caused by problems in brain development and that affect how movement and motor control happen in children. Problems with walking and talking are often the way people start a conversation about cerebral palsy.
