Bring this checklist to pre-op visits. Check off items as you discuss them with your child’s surgeon, pediatrician, and anesthesia team.
This one-page guide helps families know what to expect and what to share with the care team before surgery.
In my 30-year career as a social worker and therapist, I have seen many children, adults, couples and families face what seems impossible. There are some common characteristics with those who face impossible with fear and those who face it with hope.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
Download this guidebook before you meet with an architect to make the most out of your new home design!
A new school year means new teachers, a new grade, new friends, new goals and maybe even a new school. Our friends at Learning Disabilities Online have put together these helpful tips to help you and your child or teen transition back to school a little easier.
United Spinal Association has developed a comprehensive air travel guide for wheelchair users or anyone with mobility issues to assist with everything from traveling with your wheelchair to what to do if things break.
CP describes a spectrum of conditions that affects individuals in many different ways. Your care team may use the term GMFCS which stands for Gross Motor Function Classification Scale and is used to describe what mobility aids your child may need to complete certain tasks.
Making informed decisions about care and treatment for cerebral palsy (CP) can be overwhelming, especially with the vast amount of medical research available. Through this guide, we aim to help you better understand the types of research you may encounter and provides practical tips for evaluating studies relevant to CP.
Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.
On the days that having CP is challenging, it is extra important to take care of yourself, all those feelings and your body. When we can mention how we feel, then we figure out or manage what we need to feel better.
An honest, uplifting look at motherhood with CP — what I feared, what I learned, and how becoming a disabled mom became my greatest strength.
March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead.
Summer Camp is an experience that can benefit children with Cerebral Palsy! Camps create opportunities to make friends, learn new skills, build confidence, have an adventure, make a mess, and just have fun! Camps gives kids with disabilities the opportunity to just be kids. NO LIMITS. Whether it be a day camp or an overnight camp, there is bound to be something for everyone.
Mobility technology can enhance the lives of young children with disabilities in ways parents often never consider. Learn about how it can help your child beyond getting from point A to point B!
Setting up a comfortable home office is key to optimizing work/life balance.
Learn more about the many adaptive recreational and competitive sports for individuals with cerebral palsy.
Assistive technology comes in all shapes and sizes to help adapt your environment to best meet your needs. From tools to help you turn on the lights to high tech games to help you participate with your peers, AT can equalize the playing field!
Understanding different gait patterns is important because it can determine what interventions will potentially be the most effective.
Dysarthria is a motor speech disorder that affects how clear and understandable a person’s speech is. Between 50-90% of people with CP have dysarthria.
Spastic cerebral palsy is the most common type of CP. People will experience increased muscle tone and their movements may appear stiff or awkward.
People who have dyskinetic cerebral palsy experience involuntary movements that are difficult to control. These movements can be slow, twisting and writhing, or rapid and jerky, and can impact movement in the hands, arms, feet, legs and even the face or tongue.
Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!
Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.
