The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research.
This presentation from the 2023 AACPDM Community Forum presents and overview and a model creating opportunities for employment for individuals with disabilities.
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
An update to the current understanding and potential of stem cell therapies for CP.
Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.
In 10% to 15% of cases, there is no clear cause of CP. There is increasing recognition that genetics plays a part, but no standardized approach to genetic testing in patients with CP exists. In this study we asked the question whether both people with and without known risk factors for CP should have genetic testing.
Setting up a comfortable home office is key to optimizing work/life balance.
It is important to understand how spasticity can impact the muscles and the know what treatments are available to help.
Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.
Now you can receive a no-cost genetic test for you or your child sent directly to your home.
Individuals with disabilities have opportunities to work, receive employment training and coaching, benefits counseling and save money without losing means tested benefits. This podcast discusses these options.
Cohort-based whole exome and whole genome sequencing and copy number variant (CNV) studies have identified genetic etiologies for a sizable proportion of patients with cerebral palsy (CP). These findings indicate that genetic mutations collectively comprise an important cause of CP.
CPF Executive Director Rachel Byrne talks with Lily Collison and her son Tommy about their journey with Cerebral Palsy, Lily's new book, Tommy's work and much more.
Vocational Rehabilitation (VR), operated by the Department of Education, can be utilized for their many tools to aid those with disabilities in the preparation for the job search, finding gainful employment, and maintaining this employment.
Students with disabilities often need extra support throughout the day to access their environment, the academic materials, and learn alongside their peers. A Personal Care Attendant in the school setting is often utilized to support the students needs.
Children and teens with cerebral palsy and other disabilities may need the assistance of an individual who has a background in healthcare and the skills to provide the services essential to quality care.
Personal Care Attendants for adults with cerebral palsy and other disabilities provide a variety of essential functions that ensure safety, health, wellbeing and overall impact quality of life.
An employment agreement spells out the rules, rights and responsibilities for both the Personal Care Attendant (the employee) and the individual with cerebral palsy or family who is hiring the Personal Care Attendant.
Author David Stoner provides insight into his experience with Personal Care Attendants through the years as his needs and his family's needs have changed.
Nuestros discusiones educacionales continuó con un grupo de expertos el Jueves 25 de Marzo 2021. Este evento virtual contó con un panel de discusion multidisciplinario.
Can there be a genetic cause of Cerebral Palsy in some cases? Let's Talk CP host, Cynthia Frisina talks with Dr. Michael Kruer about this topic and his ground-breaking research in Part 2 of a two-part discussion about the possible genetic causes of CP. When Michael Kruer was in medical school, he knew he wanted to work with children. With advancements in gene therapy opening up incredible opportunities in neuroscience, he realized he could be a part of something much bigger than himself and give children affected by movement disorders like cerebral palsy hope that didn’t seem possible just a few years ago.
On this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be helpful for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does.
On this episode I talk with two of the world’s leading researchers… Dr. Madison Paton and Dr. Iona Novak on stem cell treatment for cerebral palsy. Stem Cells have been a hot topic in Cerebral Palsy for at least 15 years now, with many parents and researchers hoping that at the least, stem cells will lessen the impact of CP and at most hold the key to a cure. Dr. Paton and Dr. Novak will share their insider knowledge into this subject and help us sort through the hype and so we can hold onto our hope.
Our educational series continued with a panel of experts from Nationwide Children's Hospital on Monday, March 29th, 2021. This virtual event featured a multi-disciplinary panel discussion.
Our educational series continued with a panel of experts from Scottish Rite for Children and the University of Texas Southwestern Medical Center on Thursday, March 25th, 2021. This virtual event featured a multi-disciplinary panel discussion.