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July 9, 2025

Understanding Types of Research: A Guide for Families and Individuals with Cerebral Palsy

Making informed decisions about care and treatment for cerebral palsy (CP) can be overwhelming, especially with the vast amount of medical research available. Through this guide, we aim to help you better understand the types of research you may encounter and provides practical tips for evaluating studies relevant to CP.

June 5, 2025

Considering the Alternatives: A Guide to Decision Making for Cerebral Palsy Treatments and Therapies

Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.

Research, Talk to Professionals and Interaction

January 28, 2025

CPH - Coffee Talk Episode 4 with Dr. Nathalie Maitre: Research

In Episode 4 of Coffee Talk, Nathalie and Jen discuss research and clinical trials.

Natalie Maitre has shoulder length sandy blonde hair and blue eyes. She is wearing a blazer and smiling

April 16, 2024

The Research Works

The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research.

November 27, 2023

Episode 11: Participation with Nathan Rosenberg, MD

Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.

Nathan Rosenberg has dark hair and glasses. He is smiling and wearing a pink shirt with a tie

November 16, 2023

2023 Stem Cell Update: Hope or Hype?

An update to the current understanding and potential of stem cell therapies for CP.

November 9, 2023

Key Ingredients of Interventions to Improve Function in CP

Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.

October 18, 2023

Movers, Shakers, and Troublemakers: How Technology can Enhance Mobility and Access for Children with Disabilities

Mobility technology can enhance the lives of young children with disabilities in ways parents often never consider. Learn about how it can help your child beyond getting from point A to point B!

Young David Stoner wearing a yellow shirt and shorts and a pair of glasses in a power wheelchair holding a winnie the pooh teddy bear

May 24, 2023

Supported Stepping, what does the research say?

This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).

May 24, 2023

Supported Standing, what does the research say?

This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.

March 9, 2023

Stakeholder Perspectives on Pediatric Powered Wheelchair Standing Devices

Author summary on stakeholder perspectives of pediatric powered wheelchair standing devices.

January 24, 2023

How Does Spasticity Impact the Body?

It is important to understand how spasticity can impact the muscles and the know what treatments are available to help.

An illustration of an arm with a muscle drawn inside and an arrow on the outside depicting movement. the arm is drawn in white over a pink background.

November 18, 2022

New Horizons Virtual Town Hall 8 - Deep Dive Into Understanding Spasticity

Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.

August 29, 2022

NCART Standing Device Funding Guide

NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.

Image of 4 different types of supportive standing devices

August 25, 2022

Understanding Supportive Standing Devices

Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!

Ginny wearing a purple shirt smiling with a little boy lying in a red stander

August 16, 2022

Evidence and Guidance for Support for Standing

Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.

August 16, 2022

Complex Rehabilitation Technology Fact Sheet

Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.

Bower in a power wheelchair wearing a black shirt and tan pants smiling and driving with a head array

August 16, 2022

RESNA (Rehab Engineering and Assistive Technology Society of North America)

RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.

August 16, 2022

Stand on Demand to Increase Participation

Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.

Bower wearing a green shirt and tan pants standing in his wheelchair smiling with his golden retriever everest

April 21, 2022

The Power of Wheels

Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.

Photo of David Stoner, wearing a blue shirt, sitting in his black wheel chair with a tree in the background.

April 13, 2022

CPF LIVE! with Chris Modlesky, PhD: Exercise, Fitness and Research

CPF Executive Director Rachel Byrne and Chris Modlesky, PhD discuss exercise, fitness, research, research funding and his current research.

Christopher Modleski has dark hair and is smiling wearing a white button down and grey blazer

March 29, 2022

Episode 9: The Ins and Outs of Powered Mobility with Dr. Lisa Kenyon

Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more.

March 17, 2022

Early Powered Mobility

Early powered mobility has been shown to improve cognition in children with multiple, complex disabilities.

September 28, 2021

CPF LIVE! with Lily and Tommy Collison

CPF Executive Director Rachel Byrne talks with Lily Collison and her son Tommy about their journey with Cerebral Palsy, Lily's new book, Tommy's work and much more.

Lily has short pixie like black hair and is smiling for the camera. She is wearing a maroon top.

September 28, 2021

CPF LIVE! with Jocelyn Cohen: Research Collaboration

CPF Executive Director Rachel Byrne and Jocelyn Cohen, Vice President of Communications and Engagement at Cerebral Palsy Alliance Research Foundation discuss collaboration in research.

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