Bring this checklist to pre-op visits. Check off items as you discuss them with your child’s surgeon, pediatrician, and anesthesia team.
This one-page guide helps families know what to expect and what to share with the care team before surgery.
Preparing those with CP for orthopedic surgery is an important step to ensure the best outcomes. The following research review highlights important steps and considerations.
Researchers studied the natural history of cerebral visual impairment (CVI) in children with cerebral palsy (CP) and identify which early visual signs or symptoms are associated with cognitive visual disorders (CVDs) at school age.
A gentle, supportive guide to developing coping skills and improving quality of life for disabled and chronically ill people.
MEVU was initially developed for children with cerebral palsy. It is now being tested with a wider group of parents and caregivers. You can help by taking the MEVU Survey today!
Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
In LITTLE BEAR SEES you will learn: Exactly what CVI is What common characteristics to look for to determine if your child has CVI How the eyes and brain work together to facilitate vision Strategies and ideas for helping your child learn to see from the leading experts in cortical visual impairment
In this special episode from the AACPDM annual meeting, Belinda Deramore Denver talks about vision in CP and her current work to better understand how children use their vision to help intervene early and with the right interventions.
This comprehensive and useful guide is based on the experiences of ninety women with disabilities who chose to have children.
Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.
An empowering and evidence-based guide for living a full life with spastic quadriplegia - bilateral cerebral palsy.
An empowering and evidence-based guide for living a full life with spastic hemiplegia- unilateral cerebral palsy.
Chris achieved and accomplished things that nobody thought were attainable. He persevered through cerebral palsy and learned that God had a purpose for him.
The warm, humorous and true story of Christy Brown's supreme courage and triumph over the cerebral palsy.
Written for fifth and sixth graders, this is the third in a series about Melody, now a teenager with cerebral palsy who utilizes a communication device to interact and participate. She is on her way to London!
Misty Campbell is parent of child with complex disabilities who wrote this book as a guide for other families to advocate for their own children with significant disabilities.
Written by Jessica Frew, this book is about her experiences growing up using a communication device, including the challenges she faced.
Going beyond ADA, this book provides practical tips, tricks and guidelines for people who are looking to build or renovate a home to be accessible.
The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research.
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
An update to the current understanding and potential of stem cell therapies for CP.
Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.
Written by parents and clinicians, this helpful toolkit is designed to provide support and resources after the initial diagnosis of CP and beyond.
