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Pain
Pain is common in people with cerebral palsy with over 60% of individuals with CP reporting that they experience pain. This section looks at common causes for pain, assessments for identifying pain as well as emerging treatments. Left untreated pain can adversely impact activities, participation, and quality of life.
"Every Person who has cerebral palsy experiences pain differently" shown in text above a representation of two people, one in a wheelchair, the other using crutches
Head Over Wheels: Her Story
Growing up with Cerebral Palsy I often wondered if I would ever experience my happily ever after. The fairytales my mom read me always followed the life of a beautiful princess falling in love with a handsome prince. You never read about a prince and princess in wheelchairs or with any type of disability for that matter.
Shelby, a dark haired woman wearing a white dress sitting in a wheelchair next to David who is wear in Blue shirt and khaki pants sitting in his wheelchair.
Gillette Children's
Camp Dream Street
Catastrophic Rupture
Pediatric critical care physician and ethicist, Dr. Jane Lee was accustomed to caring for children with severe disabilities and felt comfortable helping families navigate the "system". That is until she has her own complicated delivery leaves her second child with a severe brain injury, she finds that everything she learned about disability and personhood as a physician and ethicist is no help as a parent.
Book Cover with the title Catostrophic Rupture written above the author's name, Dr. K. Jane Lee, MD in white lettering over a red background.
Assessments and Testing
Doctors utilize a variety of tests and assessments to diagnosis and determine the specific cause of cerebral palsy. They also use tests and assessments to help determine the severity of the symptoms and associated conditions, as well as monitor changes and track progress over time.
Two month old baby in incubator in the NICU