United Spinal Association has developed a comprehensive air travel guide for wheelchair users or anyone with mobility issues to assist with everything from traveling with your wheelchair to what to do if things break.
Written for fifth and sixth graders, this is the third in a series about Melody, now a teenager with cerebral palsy who utilizes a communication device to interact and participate. She is on her way to London!
Misty Campbell is parent of child with complex disabilities who wrote this book as a guide for other families to advocate for their own children with significant disabilities.
Written by Jessica Frew, this book is about her experiences growing up using a communication device, including the challenges she faced.
Going beyond ADA, this book provides practical tips, tricks and guidelines for people who are looking to build or renovate a home to be accessible.
Written by parents and clinicians, this helpful toolkit is designed to provide support and resources after the initial diagnosis of CP and beyond.
This powerful, practical book is meant to help children and adults have meaningful discussions about disability and ableism.
Speech impairments like dysarthria are common in children with cerebral palsy (CP) which can greatly affect participation across environments. Our study examined how speech impairment severity changes over time in 101 children with CP at 4, 6, 8, and 10 years of age.
When a person is looking for a way to communicate in alternative ways, they need to find something that really works for them. They need to try to find a voice that sounds natural. They want to try to find a way to be efficient. They want to be able to communicate as normally as possible, even though they're not using their biological voice.
Dysarthria is a motor speech disorder that affects how clear and understandable a person’s speech is. Between 50-90% of people with CP have dysarthria.
Welcome to the second part of my travel series! In the previous post, I wrote about how I found my love for traveling through my trip to Madrid and Paris. Looking back, not only do I realize that these trips took place during very different phases of my adult life, but they also mark the different phases of my CP in recent years. Although CP is the result of a non-progressive brain injury, many folks experience a decline in their physical abilities in their adult years — the inevitable effect of aging, not just for those with disabilities, but for everyone.
In the next couple of blog posts, I’ll write about some of my favorite trips that I took over the years. I’ll travel down memory lane of all the new places I explored in recent years and eagerly wait until my next trip.
My cousin, Reeva, had recently moved to Kyoto, Japan to learn Japanese for a year, and she convinced me to visit her there. I didn’t know anyone else living in Japan and Reeva was going to be there short term, so I couldn’t possibly pass up going! I was admittedly pretty nervous about traveling all the way across the world— a 24-hour long plane trip, including a layover— especially to a country that uses a language that isn’t remotely like anything I was used to. But, again, I wasn’t going to miss this once-in-a-lifetime opportunity.
In Everything You Need to Know About Cerebral Palsy, Dion Pincus goes in depth about cerebral palsy to help teens with CP navigate adolescence.
Living With Cerebral Palsy by Paul Pimm describes the varying effects of cerebral palsy, how different people manage to live with this condition, and where to get more information.
Theodore "Armpit" Johnson tries his best to keep out of trouble after being released from juvenile detention. But it's hard to do when the only person who believes in you is your ten year old neighbor with CP, and people from the past are trying to get you back into bad habits.
The Summer I Got A Life by Mark Fink follows brothers Andy and Brad as they navigate love and adventure during one unforgettable summer.
In I Funny: A Middle School Story by James Patterson, middle schooler Jamie Grimm faces bullying and self-doubt as he chases his dream to become the world's greatest comedian.
Noah, a cello prodigy from a long line of musicians, wants to stick to tradition. Daisy, a fiercely independent disabled violinist, is used to fighting for what she wants and likes to take risks. But the two surprise each other when they play. They fall perfectly in tune.
You are Brave is a book for every kid who has ever thought, "What if I'm not brave enough?" It's about the courage we find within ourselves, and the wonderful possibilities that open up when we have the confidence to try something new.
In "Reaching For Sun" by Tracie Vaughn Zimmer, Josie Wyatt knows what it means to be different. Even if Josie wants to forget that she was born with a disability, her mom can't seem to let it go.
In the sequel to best selling "Out of My Mind" heroine Melody a year older, armed with confidence and is ready for adventure!
Pediatric critical care physician and ethicist, Dr. Jane Lee was accustomed to caring for children with severe disabilities and felt comfortable helping families navigate the "system". That is until she has her own complicated delivery leaves her second child with a severe brain injury, she finds that everything she learned about disability and personhood as a physician and ethicist is no help as a parent.
CPF Executive Director Rachel Byrne and speech therapist, Kristen Allison, PhD, CCC-SLP discuss communication and Cerebral Palsy.
Breakthrough Parenting for Children with Special Needs challenges families and professionals to help children with special needs to reach their full potential by using a proven motivational, how-to approach.
