A gentle, supportive guide to developing coping skills and improving quality of life for disabled and chronically ill people.
In LITTLE BEAR SEES you will learn: Exactly what CVI is What common characteristics to look for to determine if your child has CVI How the eyes and brain work together to facilitate vision Strategies and ideas for helping your child learn to see from the leading experts in cortical visual impairment
In 2025, there are thousands of reels, social media accounts and testaments to the badassery that is required to live with CP. And though the world still has a long way to go, the pride, wholeness and strength of this community never ceases to amaze me.
United Spinal Association has developed a comprehensive air travel guide for wheelchair users or anyone with mobility issues to assist with everything from traveling with your wheelchair to what to do if things break.
This comprehensive and useful guide is based on the experiences of ninety women with disabilities who chose to have children.
An empowering and evidence-based guide for living a full life with spastic quadriplegia - bilateral cerebral palsy.
An empowering and evidence-based guide for living a full life with spastic hemiplegia- unilateral cerebral palsy.
March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead.
Cynthia Frisina discusses the purpose and importance of Cerebral Palsy Awareness Month and Day to bring people together to advocate for better healthcare, research advancements, funding and more those with CP and their families.
Chris achieved and accomplished things that nobody thought were attainable. He persevered through cerebral palsy and learned that God had a purpose for him.
The warm, humorous and true story of Christy Brown's supreme courage and triumph over the cerebral palsy.
Written for fifth and sixth graders, this is the third in a series about Melody, now a teenager with cerebral palsy who utilizes a communication device to interact and participate. She is on her way to London!
Misty Campbell is parent of child with complex disabilities who wrote this book as a guide for other families to advocate for their own children with significant disabilities.
Written by Jessica Frew, this book is about her experiences growing up using a communication device, including the challenges she faced.
Going beyond ADA, this book provides practical tips, tricks and guidelines for people who are looking to build or renovate a home to be accessible.
Written by parents and clinicians, this helpful toolkit is designed to provide support and resources after the initial diagnosis of CP and beyond.
People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities.
This powerful, practical book is meant to help children and adults have meaningful discussions about disability and ableism.
The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here:
The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!
Welcome to the second part of my travel series! In the previous post, I wrote about how I found my love for traveling through my trip to Madrid and Paris. Looking back, not only do I realize that these trips took place during very different phases of my adult life, but they also mark the different phases of my CP in recent years. Although CP is the result of a non-progressive brain injury, many folks experience a decline in their physical abilities in their adult years — the inevitable effect of aging, not just for those with disabilities, but for everyone.
In the next couple of blog posts, I’ll write about some of my favorite trips that I took over the years. I’ll travel down memory lane of all the new places I explored in recent years and eagerly wait until my next trip.
My cousin, Reeva, had recently moved to Kyoto, Japan to learn Japanese for a year, and she convinced me to visit her there. I didn’t know anyone else living in Japan and Reeva was going to be there short term, so I couldn’t possibly pass up going! I was admittedly pretty nervous about traveling all the way across the world— a 24-hour long plane trip, including a layover— especially to a country that uses a language that isn’t remotely like anything I was used to. But, again, I wasn’t going to miss this once-in-a-lifetime opportunity.
In Everything You Need to Know About Cerebral Palsy, Dion Pincus goes in depth about cerebral palsy to help teens with CP navigate adolescence.
Living With Cerebral Palsy by Paul Pimm describes the varying effects of cerebral palsy, how different people manage to live with this condition, and where to get more information.
