The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!
Welcome to the second part of my travel series! In the previous post, I wrote about how I found my love for traveling through my trip to Madrid and Paris. Looking back, not only do I realize that these trips took place during very different phases of my adult life, but they also mark the different phases of my CP in recent years. Although CP is the result of a non-progressive brain injury, many folks experience a decline in their physical abilities in their adult years — the inevitable effect of aging, not just for those with disabilities, but for everyone.
In the next couple of blog posts, I’ll write about some of my favorite trips that I took over the years. I’ll travel down memory lane of all the new places I explored in recent years and eagerly wait until my next trip.
My cousin, Reeva, had recently moved to Kyoto, Japan to learn Japanese for a year, and she convinced me to visit her there. I didn’t know anyone else living in Japan and Reeva was going to be there short term, so I couldn’t possibly pass up going! I was admittedly pretty nervous about traveling all the way across the world— a 24-hour long plane trip, including a layover— especially to a country that uses a language that isn’t remotely like anything I was used to. But, again, I wasn’t going to miss this once-in-a-lifetime opportunity.
This webinar with Rachel Byrne, Ashley Harris Whaley and Debbie Fink, focusses on the shifting attitudes towards disabled individuals and authentic representation in media, social media and more.
This webinar with Rachel Byrne, Executive Director of CPF, Ashley Harris Whaley, Director of Communities and Engagement at CPF and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on concepts and definitions addressing disability and how language has evolved.
This webinar, with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on the terms "ableism" and "allyship" and ways to facilitate making connections in the schools and communities.
This webinar with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. It It aims to provide an overview of disability history and laws.
Theodore "Armpit" Johnson tries his best to keep out of trouble after being released from juvenile detention. But it's hard to do when the only person who believes in you is your ten year old neighbor with CP, and people from the past are trying to get you back into bad habits.
The Summer I Got A Life by Mark Fink follows brothers Andy and Brad as they navigate love and adventure during one unforgettable summer.
In I Funny: A Middle School Story by James Patterson, middle schooler Jamie Grimm faces bullying and self-doubt as he chases his dream to become the world's greatest comedian.
Noah, a cello prodigy from a long line of musicians, wants to stick to tradition. Daisy, a fiercely independent disabled violinist, is used to fighting for what she wants and likes to take risks. But the two surprise each other when they play. They fall perfectly in tune.
You are Brave is a book for every kid who has ever thought, "What if I'm not brave enough?" It's about the courage we find within ourselves, and the wonderful possibilities that open up when we have the confidence to try something new.
In "Reaching For Sun" by Tracie Vaughn Zimmer, Josie Wyatt knows what it means to be different. Even if Josie wants to forget that she was born with a disability, her mom can't seem to let it go.
Medicaid Waivers, Katie Beckett or TEFRA are all forms of benefits that an "waive" medicaid financial restrictions for parents of children who have a developmental disability acquired prior to the age of three. Kidswaivers.org has provided a comprehensive, interactive website of all available medicaid waiver programs by State across the US.
NCART Standing Device Funding Guide contains all the information needed to choose, measure, and write a letter of medical necessity for a standing device.
This IEP Checklist should provide helpful support when preparing for, setting goals, maintaining communication and achieving student success!
A new school year means new teachers, a new grade, new friends, new goals and maybe even a new school. Our friends at Learning Disabilities Online have put together these helpful tips to help you and your child or teen transition back to school a little easier.
Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.
Complex Rehabilitation Technology serves to enhance the lives of individuals who utilize it with the goals of maximizing health, wellbeing, participation and independence.
RESNA (Rehab Engineering and Assistive Technology Society of North America) is a great place to find highly qualified rehab and assistive technology professionals in your area. They also have provided their research to help providers and the families they serve make decisions about powered mobility for young children.
Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.
Living with CP taught Dr. Kathleen Friel much about educating others about her disability and now about her life threatening diagnosis of Metastatic Breast Cancer.
Plain Language Summaries are an excellent way to get a clear overview of clinical research. Our friends with Mac Keith Press and the AACPDM Community Council have worked together to choose articles that might be right for you.
CPF Executive Director Rachel Byrne and Minnelly Vasquez, Licensed Clinical Social Worker with the Weinberg Cerebral Palsy Center at Columbia University Irving Medical Center, discuss mental health care for individuals with cerebral palsy and caregivers.
