This presentation from the 2023 AACPDM Community Forum presents and overview of the interactions between the types of Cerebral Palsy, Mental and Behavioral Health and various medications and strategies to treat challenging mental health disturbances.
Accessible Yoga Practices is a great weekly newsletter and downloadable yoga guide for those with disabilities and caregivers interested in practicing yoga, on your own terms.
This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
This presentation from the 2023 AACPDM Community Forum presents and overview and a model creating opportunities for employment for individuals with disabilities.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
This study highlights the importance of monitoring and managing chronic conditions in adults with cerebral palsy. It also provides important information that can help healthcare professionals better understand the health needs of this population.
Our research shows that higher Bone Mineral Density (BMD) was associated with a greater risk of fracture, which is opposite of what we would expect. When we picked apart the BMD ratio we found that bone size had the strongest association with fracture risk, such that smaller bones had a greater risk.
Jerron Herman, dancer, actor, trainer and more describes how he moves with spastic hemiplegia...and it might just surprise you!
Standing devices and standing wheelchair devices are frequently prescribed and often denied equipment options for individuals with cerebral palsy. The attached paper provides evidence and guidance to help appeal to insurers for this equipment.
Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.
This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.
Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Growing up with Cerebral Palsy I often wondered if I would ever experience my happily ever after. The fairytales my mom read me always followed the life of a beautiful princess falling in love with a handsome prince. You never read about a prince and princess in wheelchairs or with any type of disability for that matter.
The purpose of this study is to explore the breast cancer screening experiences of women with CP with the aim of identifying factors that could improve screening rates for women with disabilities.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.
Breast cancer is a major cause of mortality in women. Screening has been known to improve early detection for early treatment. Women with disabilities face many physical and attitudinal barriers to mammogram screenings. This webinar has been created to address the educational needs of technologists and to give women with cp and disabilities visual accurate information about the procedure.
Cohort-based whole exome and whole genome sequencing and copy number variant (CNV) studies have identified genetic etiologies for a sizable proportion of patients with cerebral palsy (CP). These findings indicate that genetic mutations collectively comprise an important cause of CP.
Vocational Rehabilitation (VR), operated by the Department of Education, can be utilized for their many tools to aid those with disabilities in the preparation for the job search, finding gainful employment, and maintaining this employment.
What do you do when you want to help your child but your local providers don't have the resources? You travel for treatment. In this personal story, Sophia's family describes their experiences traveling to Gillette Children's for treatment, including both neurosurgical and orthopedic surgeries.
A year ago, I wrote in my Forbes column about the decades-long pattern of Pride Month celebrations excluding people with disabilities. The underlying reason why Pride events were (and still are) mostly inaccessible for people with disabilities, both in terms of physical spaces and social acceptance, is that mainstream media and public don’t see them having identities outside of their disabilities.
If you’re a history nerd like me, then you probably wondered about the origin of cerebral palsy at least once in your life. As an ever-inquisitive kid, that was certainly at the forefront of my mind, especially when I was old enough to truly comprehend that I had CP.
I’m at that age when Facebook friends begin to get engaged and married, and shortly after, have children. So, I feel the pressure to proceed onto the next stage of my adulthood. But, as anyone with cerebral palsy knows, everything in life is a tad more complicated with this disability.