Supportive Standing Devices, also known as Standers, are frequently recommended equipment for individuals who are primarily wheelchair users. There are lots of different types of standers which can support a range of different physical and activity needs. Learn more about them here!
The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
An empowering and evidence-based guide for living a full life with spastic diplegia–bilateral cerebral palsy.
One of the things that was identified through research is that patients with cerebral palsy have higher rates of depression and anxiety than you would see in the general population.