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Mental Wellness Among Adults with Cerebral Palsy
Mental health care should be included at the outset, as part of discussions around physical, occupational, and speech therapies. I’ve seen studies on cerebral palsy’s effect on caregiver mental health — and that is important. Caregivers are part of the cerebral palsy community, too. It’s an interdependent one. There’s not enough about the nuance around how having cerebral palsy affects mental health.”
Drawing of the profile of a person with a heart in the center of the brain
Little Wins
LittleWins harnesses the power of community to empower people with disabilities with the tools they need to thrive! From buying, selling, and donating medical equipment and supplies, to obtaining needed information and connecting with others – LittleWins is the one-stop community resource for families, parents, caregivers, in-home nurses, and all people with disabilities.
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Episode 4: Cerebral Palsy Health. Iona Novak, PhD and Madison Paton, PhD: What's the Deal with Stem Cells Anyway?
On this episode I talk with two of the world’s leading researchers… Dr. Madison Paton and Dr. Iona Novak on stem cell treatment for cerebral palsy. Stem Cells have been a hot topic in Cerebral Palsy for at least 15 years now, with many parents and researchers hoping that at the least, stem cells will lessen the impact of CP and at most hold the key to a cure. Dr. Paton and Dr. Novak will share their insider knowledge into this subject and help us sort through the hype and so we can hold onto our hope.
Photo of Madison Paton wearing a yellow sweater and Iona Novak wearing a black shirt on a grey background
Episode 3: Cerebral Palsy Health. Amy Bailes, PhD, PT, PCS: ABC's of CP
On this episode with Dr. Amy Bailes, we discuss the Gross Motor Functional Classification System (the GMFCS), the Gross Motor Functional Measure (the GMFM), and the corresponding motor curves. The GMFCS is an important classification system that is relatively easy to understand and it helps create a shared language and framework for understanding a person with CP’s physical function. This can be very helpful for patients, families and providers of all sorts, especially as it relates to both and acceptance and understanding of the diagnosis and family-centered shared decision making.
Photo of Amy Bailes in a black shirt on a black background
My Journey of Finding Accessible Apartments
As an undergraduate student in a major metropolitan city like NYC, the thought of finding a place to live after graduation was very daunting. I didn’t have many options for accessible dorms on campus, so I could only wonder how much more difficult it’d be to find a “real-life adult” apartment that I could afford as a 20-something-year-old. My apartment search began one year earlier than
Words "My Journey of Finding Accessible Apartments" with a picture of an apartment building with a magnifying glass over it.
30th Anniversary of the Americans with Disabilities Act
The historic Americans with Disabilities Act (ADA) was signed into law on July 26, 1990, by President George H.W. Bush — marking this month its 30th anniversary. The ADA was the country’s first-ever comprehensive civil rights law for people with disabilities, offering protection against discrimination and imposing accessibility requirements in workplaces and the public. The passage of this law was
Text: 30th Anniversary of the Americans with Disabilities Act
Will the “Post-Pandemic” Workplace Be More Inclusive of Employees with Disabilities?
As cities and states across the countries are lifting the COVID-19 lockdown orders, people are returning to work at their offices. However, since the virus is still very much going around, employers must be vigilant about keeping their workplaces as safe as possible. Although we might be seeing a sense of “normalcy,” there’s still a long way to go before reaching the pre-pandemic normalcy—if we
Sarah Kim sitting at a desk doing work. Text is article title Will the “Post-Pandemic” Workplace Be More Inclusive of Employees with Disabilities?
What Companies and Schools Should Learn About Disability Accommodations from the COVID-19 Outbreak
As the COVID-19 outbreak continues to sweep through the country, there are increasing orders from local governments for residents to stay at home, unless they’re essential workers. Both professionals and students are relying on Zoom and other video conferencing software to work or learn from the comforts of their home, although such measures, in most cases, were not permitted before the pandemic.
"Learning from Disability Accommodations for COVID-19" written in text next to an image of writer, Sarah Kim