In 10% to 15% of cases, there is no clear cause of CP. There is increasing recognition that genetics plays a part, but no standardized approach to genetic testing in patients with CP exists. In this study we asked the question whether both people with and without known risk factors for CP should have genetic testing.
This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).
This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.
Author summary on stakeholder perspectives of pediatric powered wheelchair standing devices.
This webinar is with Ketrina Hazell, Ms. Wheelchair 2018, a young woman with cerebral palsy and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar is about Ketrina's lived experience in the school system and community and what worked or didn't work as she was growing up.
This webinar with Rachel Byrne, Ashley Harris Whaley and Debbie Fink, focusses on the shifting attitudes towards disabled individuals and authentic representation in media, social media and more.
This webinar with Rachel Byrne, Executive Director of CPF, Ashley Harris Whaley, Director of Communities and Engagement at CPF and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on concepts and definitions addressing disability and how language has evolved.
This webinar, with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on the terms "ableism" and "allyship" and ways to facilitate making connections in the schools and communities.
This webinar with Rachel Byrne, Executive Director of Cerebral Palsy Foundation, Ashley Harris Whaley, Director of Communities and Engagement, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program.This video series is a partnership with the New York City Department of Education and the Cerebral Palsy Foundation "Just Say Hi" Disability Education Curriculum. This series is meant to educate and empower parents of students with diverse needs.
This webinar with Jennifer Lyman, Content Manager for CP Resource and parent of a teen son with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success and participation at school and in the community.
This webinar with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. It It aims to provide an overview of disability history and laws.
This webinar with Jacqueline Wentworth, Pediatric Occupational Therapist and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success at home.
Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.
The purpose of this study was to pilot an intervention of a sport-based youth development program modified for accessibility for children and adolescents with movement challenges, with the goal of community-based running participation using running frames.
Bimanual therapy, also referred to as intensive bimanual training, engages patients in active play or practice to improve the use and coordination of both hands. Bimanual therapy is different from similar unimanual therapies, like constraint-induced movement therapy (CIMT), because it promotes simultaneous use of both hands.
This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.
The GMFCS, MACS and CFCS are all tools used by therapists and researchers to help classify the functional capabilities of individuals with CP. This research article provides evidence of their stability over time.
The GMFCS can be a helpful tool in clinical and research use and has been shown to be stable and accurate over time. It can also help individuals and families better understand cerebral palsy.
Powered mobility can offer users young and old a level of freedom and independence that may not be achieved through manual wheelchairs or other mobility devices.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Early powered mobility has been shown to improve cognition in children with multiple, complex disabilities.
Growing up with Cerebral Palsy I often wondered if I would ever experience my happily ever after. The fairytales my mom read me always followed the life of a beautiful princess falling in love with a handsome prince. You never read about a prince and princess in wheelchairs or with any type of disability for that matter.
The purpose of this study is to explore the breast cancer screening experiences of women with CP with the aim of identifying factors that could improve screening rates for women with disabilities.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.