Children and adults with cerebral palsy (CP) across all GMFCS levels are frequently prescribed orthotic devices to support mobility, alignment, and function. Join us for an informative session featuring clinical experts alongside individuals with lived experience, offering both professional insight and practical perspectives. Participants will gain a deeper understanding of the purpose of orthotics across different mobility levels, explore common types of orthotic devices and key considerations for proper fit and comfort, and learn strategies to support consistent and effective use.
This study looked at how to make health research more inclusive for children with disabilities and their caregivers.
Transcript of the CP Connect virtual event highlighting adaptive fitness, recreation and sports
Adaptive fitness, recreation and sports programs are a great way to build strength, endurance, and cardiovascular health while also making friends and having fun. Join us to learn more with experts to discuss a variety of models of fitness and adaptive recreation and sports programs, how to get involved, how to know what type of program might be a good fit for your child or yourself, and how to advocate for your needs.
Transcript of Cerebral Palsy Health with Dr. Adam Kirton on Brain Computer Interface
This episode with pediatric neurologist, Adam Kirton explores the ins and outs of Brain Computer Interface.
Transcript of interview with Drs. Verena Schreiber and Hank Chambers
In this episode with Drs. Verena Schreiber and Hank Chambers, Jen discusses the preparations necessary to help ensure ensure a successful orthopedic surgery and a positive outcome.
Bring this checklist to pre-op visits. Check off items as you discuss them with your child’s surgeon, pediatrician, and anesthesia team.
This one-page guide helps families know what to expect and what to share with the care team before surgery.
Preparing those with CP for orthopaedic surgery is an important step to ensure the best outcomes. The following research review highlights important steps and considerations.
I began thinking about this in regards to CP Awareness Day a bit differently. If we think about even the name, Cerebral Palsy Awareness, there are so many things I imagine you would like others to be aware of, as caregivers and Cerebral Palsy warriors. What does awareness mean to each of us, personally?
Researchers studied the natural history of cerebral visual impairment (CVI) in children with cerebral palsy (CP) and identify which early visual signs or symptoms are associated with cognitive visual disorders (CVDs) at school age.
Transcript of Cerebral Palsy Health Podcast with Dr. Ginny Paleg
In this episode with Dr. Ginny Paleg, Jen explores the evidence surrounding DMI and similar interventions.
A gentle, supportive guide to developing coping skills and improving quality of life for disabled and chronically ill people.
In my 30-year career as a social worker and therapist, I have seen many children, adults, couples and families face what seems impossible. There are some common characteristics with those who face impossible with fear and those who face it with hope.
For all of us, the idea of adjusting is so important in understanding ourselves, those around us and the kindness that can happen when offered with care and understanding.
As we end the year and move into the next, we ask how in the world, do we go into a whole new year, brave?
MEVU was initially developed for children with cerebral palsy. It is now being tested with a wider group of parents and caregivers. You can help by taking the MEVU Survey today!
Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
