Researchers want to hear from adults with cerebral palsy and caregivers of adults with cerebral palsy about your experiences with health and research.
Transcript of interview with Drs. Verena Schreiber and Hank Chambers
In this episode with Drs. Verena Schreiber and Hank Chambers, Jen discusses the preparations necessary to help ensure ensure a successful orthopedic surgery and a positive outcome.
Bring this checklist to pre-op visits. Check off items as you discuss them with your child’s surgeon, pediatrician, and anesthesia team.
This one-page guide helps families know what to expect and what to share with the care team before surgery.
Preparing those with CP for orthopaedic surgery is an important step to ensure the best outcomes. The following research review highlights important steps and considerations.
I began thinking about this in regards to CP Awareness Day a bit differently. If we think about even the name, Cerebral Palsy Awareness, there are so many things I imagine you would like others to be aware of, as caregivers and Cerebral Palsy warriors. What does awareness mean to each of us, personally?
Researchers studied the natural history of cerebral visual impairment (CVI) in children with cerebral palsy (CP) and identify which early visual signs or symptoms are associated with cognitive visual disorders (CVDs) at school age.
Researchers are exploring the intersection between adults with Spastic Cerebral Palsy and Symptoms of Stress, Anxiety, and Trauma
Transcript of Cerebral Palsy Health Podcast with Dr. Ginny Paleg
In this episode with Dr. Ginny Paleg, Jen explores the evidence surrounding DMI and similar interventions.
A gentle, supportive guide to developing coping skills and improving quality of life for disabled and chronically ill people.
In my 30-year career as a social worker and therapist, I have seen many children, adults, couples and families face what seems impossible. There are some common characteristics with those who face impossible with fear and those who face it with hope.
For all of us, the idea of adjusting is so important in understanding ourselves, those around us and the kindness that can happen when offered with care and understanding.
As we end the year and move into the next, we ask how in the world, do we go into a whole new year, brave?
MEVU was initially developed for children with cerebral palsy. It is now being tested with a wider group of parents and caregivers. You can help by taking the MEVU Survey today!
Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
CVI and Cerebral Palsy often co-occur. It’s important to understand how CVI manifests with CP.
In LITTLE BEAR SEES you will learn: Exactly what CVI is What common characteristics to look for to determine if your child has CVI How the eyes and brain work together to facilitate vision Strategies and ideas for helping your child learn to see from the leading experts in cortical visual impairment
In this special episode from the AACPDM annual meeting, Belinda Deramore Denver talks about vision in CP and her current work to better understand how children use their vision to help intervene early and with the right interventions.
The 2025 Accessible Holiday Gift Guide makes finding meaningful gifts easy, with adaptive and inclusive ideas for every celebration—because giving should be enjoyable all year round.
