Cerebral Palsy Health with Jen Lyman
Cerebral Palsy is a complex health condition that impacts each individual differently. As a result, finding information about what might help improve function, increase participation, and achieve health and lifestyle goals can be difficult. This podcast is a place for conversations with experts about issues related to cerebral palsy that affect health, fitness, function and participation. We will cover a range of topics including: treatments and therapies, nutrition, neuroplasticity, genetics, exercise and fitness, adaptive sports, accessibility, and new trends.
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Episode 11: Participation with Nathan Rosenberg, MD Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP. -
Episode 10: Early Detection and Intervention with Dr. Nathalie Maitre Dr. Nathalie Maitre discusses the CPF Early Detection and Intervention Network and helps us to understand how babies learn, how CP impacts the developing brain, and early intervention strategies that can help. -
Episode 9: The Ins and Outs of Powered Mobility with Dr. Lisa Kenyon Powered mobility has the ability to do so much more than help an individual get from point a to point b. Check out this episode of Cerebral Palsy Health with researcher Lisa Kenyon, PT, DPT, PhD to learn more. -
Episode 8: Cerebral Palsy Health. Disability and Employment with Sarah Storck and David Stoner Individuals with disabilities have opportunities to work, receive employment training and coaching, benefits counseling and save money without losing means tested benefits. This podcast discusses these options. -
Episode 7: Cerebral Palsy Health. Noam Platt - Makers Making Change We rely on assistive technology for everything from holding utensils better to using a complex communication device. Makers Making Change is helping to create both custom and affordable assistive tech for all abilities and needs. -
Episode 6: Cerebral Palsy Health. Theresa Sukal Moulton, PT, DPT, PhD and David Black: Frame Running an Adaptive Recreational Sport for Individuals with Cerebral Palsy Frame Running is becoming increasingly popular as a recreational and competitive sport for individuals with cerebral palsy across all GMFCS levels. Tune in to learn more! -
Episode 5: Cerebral Palsy Health. Wendy Pierce, MD: What Does a Physiatrist Do Anyway? On this episode, I have the honor of talking with Wendy Pierce, MD, a pediatric physiatrist at Colorado Children's Hospital about physiatry, also known as Physical Medicine and Rehabilitation. This fantastic field of medicine can be helpful for individuals with cerebral palsy across with lifespan, but it has a confusing name and sometimes a confusing job description. So we set out to help listeners better understand what a physiatrist does. -
Episode 4: Cerebral Palsy Health. Iona Novak, PhD and Madison Paton, PhD: What's the Deal with Stem Cells Anyway? On this episode I talk with two of the world’s leading researchers… Dr. Madison Paton and Dr. Iona Novak on stem cell treatment for cerebral palsy. Stem Cells have been a hot topic in Cerebral Palsy for at least 15 years now, with many parents and researchers hoping that at the least, stem cells will lessen the impact of CP and at most hold the key to a cure. Dr. Paton and Dr. Novak will share their insider knowledge into this subject and help us sort through the hype and so we can hold onto our hope. -
Episode 3: Cerebral Palsy Health. Amy Bailes, PhD, PT, PCS: ABC's of CP On this episode with Dr. Amy Bailes, we discuss the Gross Motor Functional Classification System (the GMFCS), the Gross Motor Functional Measure (the GMFM), and the corresponding motor curves. The GMFCS is an important classification system that is relatively easy to understand and it helps create a shared language and framework for understanding a person with CP’s physical function. This can be very helpful for patients, families and providers of all sorts, especially as it relates to both and acceptance and understanding of the diagnosis and family-centered shared decision making. -
Episode 2: Cerebral Palsy Health. Mary Gannotti, PhD, PT: Fitness, Health and Function Across the Lifespan for Individuals with Cerebral Palsy In this episode, Mary Gannotti, PhD, PT, discusses fitness, health and function across the lifespan for individuals with cerebral palsy. -
Episode 1: Cerebral Palsy Health. Meet Your Host - Jen Lyman In this first episode, listeners will meet the host, Jen, learn about her background, her son, Bower, and the reason for creating this podcast. Enjoy!
