Whether you are a caregiver or an individual with CP, the decision to pursue a treatment or therapy can be daunting. Use this guide to help you sort through the hype and determine what might help.
This compelling podcast and article tell the story of one doctor who strives to improve the lives of those living with intellectual and physical disabilities despite many hurdles.
The Research Works podcast is designed for health professionals in the area of child health, where we discuss emerging, modern, evidence based research.
The Accessible Stall is a disability podcast hosted by Kyle Khachadurian and Emily Ladau that keeps it real about issues within the disability community. Because we each have different disabilities and mobility levels, we approach everything we talk about with two unique viewpoints, offering our listeners a fresh insight into how differences in disability can color your experiences and perspectives. And we never shy away from offering our honest opinion. Even if they go against the grain of the disability community at large, we always speak our minds.
This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
An update to the current understanding and potential of stem cell therapies for CP.
Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.
This study highlights the importance of monitoring and managing chronic conditions in adults with cerebral palsy. It also provides important information that can help healthcare professionals better understand the health needs of this population.
We studied how common pain was thought to be due to muscle spasticity in the legs or arms is in children/adolescents with CP.
It is important to understand how spasticity can impact the muscles and the know what treatments are available to help.
Are you wondering how spasticity impacts movement, mobility and function? What tools do physicians have in their tool box to treat spasticity and how do can you help to maximize the impact of these treatments? This virtual event covers it all featuring two of the leading experts in Spasticity and Spasticity Management.
CPF Executive Director Rachel Byrne and Jason Benetti talk about his hard work, misperceptions, resilience, and his experience with cerebral palsy.
CPF Executive Director Rachel Byrne and Xian Horn, author and disability advocate discuss breaking down stereotypes.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
CPF Executive Director Rachel Byrne and Mary Gannotti, PhD, PT discuss pain across the lifespan in cerebral palsy.
Pain in people with cerebral palsy is very common, and probably not evaluated frequently enough.
A lot of people with cerebral palsy will experience pain over the course of their life. Through better assessment we can provide better interventions, which will lead to a better quality of life.
The Cerebral Palsy Foundation has created a factsheet to help guide you in understanding and treating pain with CP. This fact sheet has been created for individuals with cerebral palsy to provide basic guidance surrounding common causes and potential treatment of pain.
Growing up with Cerebral Palsy I often wondered if I would ever experience my happily ever after. The fairytales my mom read me always followed the life of a beautiful princess falling in love with a handsome prince. You never read about a prince and princess in wheelchairs or with any type of disability for that matter.
The Cerebral Palsy Foundation has created a checklist to help guide you in living the healthiest life possible. This checklist has been created for adults with cerebral palsy to provide basic guidance surrounding routine and additional screenings that should occur as part of your primary and preventive care.
Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.
Our educational series continues with this virtual event featuring a multi-disciplinary panel discussion on spasticity management and related issues for adults with Cerebral Palsy!
CPF Executive Director Rachel Byrne and Lily Collison with Kara Buckley and individuals from the book Pure Grit, talk about what it takes to be successful with a disability.
