Misty Campbell is parent of child with complex disabilities who wrote this book as a guide for other families to advocate for their own children with significant disabilities.
Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.
It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
This fact sheet is a sexual and reproductive health guideline for providers treating young women with cerebral palsy.
It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions