This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
This fact sheet is a sexual and reproductive health guideline for providers treating young women with cerebral palsy.
When it comes to preparing your child for Botulinum Toxin injections, the first most important thing to remember is to know your child.
It’s SMART to think about what you might want to discuss at your next doctor’s appointment. Here are some suggestions