We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
The second Virtual Town Hall featured the experts from Rady Children's Hospital, Southern Family CP Center, and UC San Diego School of Medicine in San Diego, California. This multi-disciplinary panel discussion highlights the latest updates in care of children with CerebralPalsy.
Cerebral palsy is an injury to the brain, but what we find is that it has a lot of effects on how you use your muscles.
For people with a physical disability, activity is a lifestyle. It's something that can start in physical therapy, but it really is something that has to be carried over into their everyday lives. What has happened over the years is we're understanding the importance of mobility.
It's really hard just to watch someone walk to decide what's wrong with them. A better way is to do what's called Three Dimensional Gait Analysis, and that's where the child comes into one of our labs. Here, we put markers on their face, hands, and legs. We have a computer and a bunch of cameras all around the room. And then we're able to break down the gait into three dimensions.
Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. Depending on the part of the brain that is injured depends on how someone’s muscle tone will be effected. For people with spastic CP they have increased muscle tone because of the part of the brain that's injured. If causes very tight muscles which in turn effects the movement of the joints and of the limbs. For others who have dyskinetic CP they lose the ability to have voluntary control over their muscles, and they can have jerky and uncontrolled movement patterns.
As an orthopedic surgeon I take care of children from the time they're born all the way through to adulthood . My oldest patient I have is 87 years old. As part of my practice I'm able to take care of all of their musculoskeletal problems, their problems with their bones and their joints.
Early interventions for CP should be based on the strongest possible scientific evidence for benefit and should have the smallest possible risk of harm. In the US, early intervention (EI) is a system of services available under the age of 3, to support infants and toddlers with developmental problems and their families as they interact with and care for their child.