| Cerebral Palsy Foundation

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October 25, 2023

Should Everyone with CP have Genetic Testing?

In 10% to 15% of cases, there is no clear cause of CP. There is increasing recognition that genetics plays a part, but no standardized approach to genetic testing in patients with CP exists. In this study we asked the question whether both people with and without known risk factors for CP should have genetic testing.

June 30, 2022

Caregiver Knowledge and Preferences for Gross Motor Function Information in Cerebral Palsy

This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.

November 5, 2021

Optimizing Health and Wellbeing Across the Lifespan

Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.

June 17, 2021

Saved by the Mom Squad

We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.

Photo of Lelia Purky wearing a straw har with a yellow flower with blue doodles

March 23, 2021

Designing Exercise to Improve Bone Health Among Individuals With Cerebral Palsy

There are multiple factors that impact bone health, including birth weight, nutrition, medications for seizures and/or reflux, genetics, and physical activity. Targeted exercise to improve bone health in childhood can be sustained into adulthood, and childhood is the best time to promote bone health.

July 1, 2020

Measuring Growth for Children with Cerebral Palsy

Weight, height and body composition are important indicators for development. The tools used to measure these can be different for children with cerebral palsy.

Illustration on pink background with a female clinician sitting across from a family including parents and a young girl in a wheelchair. There is a question mark in a speech bubble above the young girl and the clinician is holding a clipboard with the words growth, nutrition and body composition on it.

July 1, 2020

Use of Segmental Lengths for the Assessment of Growth in Children with Cerebral Palsy

Children with cerebral palsy (CP) often grow poorly and assessment of growth in this population is further complicated by two main difficulties. Firstly, children may have joint contractures, muscular weakness, scoliosis, and/or involuntary movements that make standing or lying straight difficult, if not impossible.

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