Welcome to That Mom With CP-a space created to celebrate and support mothers with cerebral palsy through shared stories, adaptive parenting tips, and honest conversations about self-care and disability.
Discover how living with cerebral palsy has made me a more patient, adaptable, and intentional mom—and why disability can be a strength, not a setback.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
Let me tell you about multimodal communication. We, as typical communicators, all use many different strategies. We use speech, gestures, facial expressions, technology, and no-tech solutions. As communicators, we all size up the situation based upon our communication partners, the context, the environment and then we choose to use the most effective communication strategy.