This presentation from the 2023 AACPDM Community Forum presents a model for creating a smooth transition from pediatric care to adult care for teens and young adults with cerebral palsy.
This presentation from the 2023 AACPDM Community Forum presents and overview and a model creating opportunities for employment for individuals with disabilities.
This review explores how muscles adapt to various forms of exercise in children and adolescents with CP.
Early diagnosis begins with a medical history and involves using neuroimaging, standardized neurological, and standardized motor assessments that indicate congruent abnormal findings indicative of cerebral palsy. Clinicians should understand the importance of prompt referral to diagnostic-specific early intervention to optimize infant motor and cognitive plasticity, prevent secondary complications, and enhance caregiver well-being.
Frame Running is a growing sport and now there is now a central hub for frame running information across the United States and Canada!
Transcript of Episode 11 with Nathan Rosenberg, MD talking about participation.
Dr. Nathan Rosenberg discusses the importance of community participation as a big part of raising an individual with CP.
Our Accessible Holiday Gift Guide is a great place to find gifts, gadgets, gear, and more...not just for the holidays but for birthdays or any day you are looking for something special, all year round!
An update to the current understanding and potential of stem cell therapies for CP.
Founded by Susan Banks and Courtney Craven, Can I Play that? (CIPT) has grown from a hobby site to a destination for gamers and developers alike that provides all forms of accessibility information on video games and the industry.
Intervention to improve function for children and young people with cerebral palsy needs to include client-chosen goals and whole-task practice of goals. Clinicians should consider child/family preferences, age, and ability when selecting specific interventions.
In 10% to 15% of cases, there is no clear cause of CP. There is increasing recognition that genetics plays a part, but no standardized approach to genetic testing in patients with CP exists. In this study we asked the question whether both people with and without known risk factors for CP should have genetic testing.
This study highlights the importance of monitoring and managing chronic conditions in adults with cerebral palsy. It also provides important information that can help healthcare professionals better understand the health needs of this population.
Our research shows that higher Bone Mineral Density (BMD) was associated with a greater risk of fracture, which is opposite of what we would expect. When we picked apart the BMD ratio we found that bone size had the strongest association with fracture risk, such that smaller bones had a greater risk.
Transcript of CPF Live with Dr. Heather Riordan of the Kennedy Krieger Institute discussing dyskinesia with Rachel Byrne.
Mobility technology can enhance the lives of young children with disabilities in ways parents often never consider. Learn about how it can help your child beyond getting from point A to point B!
CPF Executive Director Rachel Byrne and Dr. Heather Riordan, Director of the Phelps Center for Cerebral Palsy at the Kennedy Krieger Institute discuss dyskinesia.
This recently started clinical drug trial is currently enrolling children, adolescents, and adults between 6 and 70 years of age, across the United States who have involuntary movements that are difficult to control. It is testing an investigational drug to see if it has an effect on these involuntary movements.
The Cerebral Palsy Foundation is excited to announce our NEW mentorship program If you: 1) Have Cerebral Palsy 2) Are in the healthcare or research fields 3) Have less than 5 years of experience, you are invited to apply!
Written by parents and clinicians, this helpful toolkit is designed to provide support and resources after the initial diagnosis of CP and beyond.