I began thinking about this in regards to CP Awareness Day a bit differently. If we think about even the name, Cerebral Palsy Awareness, there are so many things I imagine you would like others to be aware of, as caregivers and Cerebral Palsy warriors. What does awareness mean to each of us, personally?

In 2025, there are thousands of reels, social media accounts and testaments to the badassery that is required to live with CP. And though the world still has a long way to go, the pride, wholeness and strength of this community never ceases to amaze me.

March is National Cerebral Palsy Month in the United States and is an opportunity to highlight the history of cerebral palsy advocacy - where we’ve been, where we are currently, and the opportunities that are ahead.

People with disabilities represent more than 27% of the United States adult population, making them the single largest minority group in the country. This new NIH designation, new research program and update to NIH mission are actions to ensure inclusion of people with disabilities.

The bipartisan, Cerebral Palsy Research Act, is introduced by Congressman Steve Cohen of Tennessee. Read more here:

The 2023 Appropriations Act has passed and thanks to advocacy by the cerebral palsy community, it includes the strongest language and funding yet for cerebral palsy!

Medicaid Waivers, Katie Beckett or TEFRA are all forms of benefits that an "waive" medicaid financial restrictions for parents of children who have a developmental disability acquired prior to the age of three. Kidswaivers.org has provided a comprehensive, interactive website of all available medicaid waiver programs by State across the US.