| Cerebral Palsy Foundation

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April 6, 2023

Finding Your Voice & The Best Communication System For You

When a person is looking for a way to communicate in alternative ways, they need to find something that really works for them. They need to try to find a voice that sounds natural. They want to try to find a way to be efficient. They want to be able to communicate as normally as possible, even though they're not using their biological voice.

Stick Figure sitting in wheelchair using laser pointer to communicate

January 18, 2023

Dystonia Systematic Review

This systematic review looks at all available evidence for pharmacological/neurosurgical interventions for managing dystonia in individuals with cerebral palsy to inform the AACPDM care pathway.

January 10, 2023

Dysarthria and Cerebral Palsy Fact Sheet

Dysarthria is a motor speech disorder that affects how clear and understandable a person’s speech is. Between 50-90% of people with CP have dysarthria.

JJ Dimeo with on-screen siblings sharing a laugh and using AAC device

July 1, 2020

Everyone Experiences Pain Differently

There are so many different causes for potential pain that it can be hard to find the cause. If you have CP or are a parent of someone with CP it is really important to empower yourself with information on pain including what causes it and options for treatment. You need to work out what is causing the pain not just mask it with pain medication.

"Every Person who has cerebral palsy experiences pain differently" shown in text above a representation of two people, one in a wheelchair, the other using crutches

July 1, 2020

OPD Feeding or Swallowing Difficulties

Oropharyngeal dysphagia, or OPD, is an impairment of the oral or pharyngeal phases of the swallow. This can impair muscle movements and coordination of the mouth, such as the lips, tongue, jaw, cheeks, palate, and also muscles of the pharynx and the entry to the airway.

Representation of parents seated at a table feeding their child at the center

July 1, 2020

Promoting Bone Health in People with Cerebral Palsy

When we have a physical disability, our bones can get a bit weak or osteoporotic. Something that can be improved is promoting bone health for people with cerebral palsy.

White sun over green background (vitamin D)

July 1, 2020

What to Expect- Your First Speech Language Appointment

A speech language pathologist is someone who is trained in working with kids and adults. Everything from working with articulation errors and correcting things to what I do, which is working with people with profound physical impairments and getting them augmentative communication strategies.

Mom holding daughter Briana outside of her crib

July 1, 2020

Supporting Reading for a Child who is Non-Verbal

I'm going to be talking about AAC and reading and some different things that you might not think about when you are doing those types of activities. When you're supporting reading for a nonverbal child, whether they use a high-tech system or a light-tech system, like a paperboard, you want to make sure that they have plenty of the opportunities to contribute to the experience. You want to be able to comment. You want to be able to talk about the people, the places, the things, and maybe the feelings that they have.

Photo of Pati King Debaun with words that say Get the child engaged in reading with you

July 1, 2020

Understanding Brain Injury in Cerebral Palsy

It is important to understand the brain injury for each individual person, because they can be really different. Where the injury is can give us important clues to what motor problems that individual will have. The time you have the biggest risk to having a stroke is as a baby, not as an adult so it is important to understand what may be happening in the infants brain.

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