| Cerebral Palsy Foundation

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May 1, 2024

Cerebral Palsy, Mental Health and Psychotropic Medications

This presentation from the 2023 AACPDM Community Forum presents and overview of the interactions between the types of Cerebral Palsy, Mental and Behavioral Health and various medications and strategies to treat challenging mental health disturbances.

May 24, 2023

Supported Stepping, what does the research say?

This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).

May 24, 2023

Supported Standing, what does the research say?

This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.

January 18, 2023

Dystonia Systematic Review

This systematic review looks at all available evidence for pharmacological/neurosurgical interventions for managing dystonia in individuals with cerebral palsy to inform the AACPDM care pathway.

June 17, 2021

Saved by the Mom Squad

We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.

Photo of Lelia Purky wearing a straw har with a yellow flower with blue doodles

July 1, 2020

Everyone Experiences Pain Differently

There are so many different causes for potential pain that it can be hard to find the cause. If you have CP or are a parent of someone with CP it is really important to empower yourself with information on pain including what causes it and options for treatment. You need to work out what is causing the pain not just mask it with pain medication.

"Every Person who has cerebral palsy experiences pain differently" shown in text above a representation of two people, one in a wheelchair, the other using crutches

July 1, 2020

Cognitive Assessments for Infants With Cerebral Palsy

The typical cognitive assessments that are used for children require them to be able to use their hands to point to pictures or hold puzzle pieces.

A screenshot from the YouTube video, "Cognitive Assessments for Infants with CP"

July 1, 2020

Promoting Bone Health in People with Cerebral Palsy

When we have a physical disability, our bones can get a bit weak or osteoporotic. Something that can be improved is promoting bone health for people with cerebral palsy.

White sun over green background (vitamin D)

July 1, 2020

Learning To Move And The Goals Of Therapy

For a child with CP learning to move, the really important things to remember are that the child should always be active.

July 1, 2020

Understanding Brain Injury in Cerebral Palsy

It is important to understand the brain injury for each individual person, because they can be really different. Where the injury is can give us important clues to what motor problems that individual will have. The time you have the biggest risk to having a stroke is as a baby, not as an adult so it is important to understand what may be happening in the infants brain.

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