| Cerebral Palsy Foundation

8 results found

Sort by

May 24, 2023

Supported Stepping, what does the research say?

This comprehensive review of the research evidence surrounding supportive stepping for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a supported stepping device (also known as gait trainers).

May 24, 2023

Supported Standing, what does the research say?

This comprehensive review of the research evidence surrounding supportive standing for individuals, GMFCS IV and V, provides helpful information for families to make practical decisions about for whom, when, and how long to use a standing device.

June 17, 2021

Saved by the Mom Squad

We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.

Photo of Lelia Purky wearing a straw har with a yellow flower with blue doodles

July 1, 2020

The Complexity of Acceptance

When you use alternate means of communication it can be really frustrating to go out in community. It is hard to know whether people are understanding you and whether they will take the time to listen. A lot of times it's hard for people to admit that they're not always comfortable with a device or a wheelchair or person who does things differently. So the more we can expose and educate people the better off we all will be. When we talk about acceptance, we're not just talking about people in society accepting people with disabilities. We're also talking about people with disabilities who are using alternate means of communication and how difficult it is for them to be out in the community.

Representation of a person in a wheelchair using assistive technology to communicate with a group of people around them.

July 1, 2020

Measuring Growth for Children with Cerebral Palsy

Weight, height and body composition are important indicators for development. The tools used to measure these can be different for children with cerebral palsy.

Illustration on pink background with a female clinician sitting across from a family including parents and a young girl in a wheelchair. There is a question mark in a speech bubble above the young girl and the clinician is holding a clipboard with the words growth, nutrition and body composition on it.

July 1, 2020

Use of Segmental Lengths for the Assessment of Growth in Children with Cerebral Palsy

Children with cerebral palsy (CP) often grow poorly and assessment of growth in this population is further complicated by two main difficulties. Firstly, children may have joint contractures, muscular weakness, scoliosis, and/or involuntary movements that make standing or lying straight difficult, if not impossible.

July 1, 2020

Don't Be Boring Customizing Language

Drawing of AAC device with the word "epic" selected

July 1, 2020

The Art of Storytelling with AAC

Everybody tells stories, and that includes people who use communication systems. To ensure success and the ability to participate we need to make it as easy as possible. So that we can tell stories whenever we want, wherever we want, to whomever we want, and in a really easy way, so we can be successful.

Article Type

ICF Category

Topic

Contributor

GMFCS Level

Age Range

Motor Type