| Cerebral Palsy Foundation

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October 25, 2023

Bone Health Among Adults with Cerebral Palsy: Higher bone mineral density may be deceiving

Our research shows that higher Bone Mineral Density (BMD) was associated with a greater risk of fracture, which is opposite of what we would expect. When we picked apart the BMD ratio we found that bone size had the strongest association with fracture risk, such that smaller bones had a greater risk.

January 24, 2023

How Does Spasticity Impact the Body?

It is important to understand how spasticity can impact the muscles and the know what treatments are available to help.

An illustration of an arm with a muscle drawn inside and an arrow on the outside depicting movement. the arm is drawn in white over a pink background.

December 8, 2022

JSH Educational Webinar 8: Anecdotal Lessons Learned from Lived Experience

This webinar is with Ketrina Hazell, Ms. Wheelchair 2018, a young woman with cerebral palsy and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar is about Ketrina's lived experience in the school system and community and what worked or didn't work as she was growing up.

Anecdotal Lessons Learned from Lived Experience webinar

December 8, 2022

JSH Educational Webinar 4: Breaking Down Stereotypes

This webinar with Rachel Byrne, Ashley Harris Whaley and Debbie Fink, focusses on the shifting attitudes towards disabled individuals and authentic representation in media, social media and more.

December 8, 2022

JSH Educational Webinar 3: Power of Language

This webinar with Rachel Byrne, Executive Director of CPF, Ashley Harris Whaley, Director of Communities and Engagement at CPF and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on concepts and definitions addressing disability and how language has evolved.

Power of Language - Webinar Listing Image

December 8, 2022

JSH Educational Webinar 2: Making Connections

This webinar, with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program, focusses on the terms "ableism" and "allyship" and ways to facilitate making connections in the schools and communities.

Making Connections - Webinar Listing Image

December 8, 2022

JSH Educational Webinar 5: Cultivating Welcoming Communities

This webinar with Rachel Byrne, Executive Director of Cerebral Palsy Foundation, Ashley Harris Whaley, Director of Communities and Engagement, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program.This video series is a partnership with the New York City Department of Education and the Cerebral Palsy Foundation "Just Say Hi" Disability Education Curriculum. This series is meant to educate and empower parents of students with diverse needs.

Welcoming communities - webinar listing image

December 8, 2022

JSH Educational Webinar 7: The Balancing Act

This webinar with Jennifer Lyman, Content Manager for CP Resource and parent of a teen son with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success and participation at school and in the community.

The Balancing Act: Meeting Students where their at and motivating them where they can go

December 8, 2022

JSH Educational Webinar 1: What is Disability - Introducing Disability

This webinar with Ashley Harris Whaley, Director of Communities and Engagement, Rachel Byrne, Executive Director of CPF, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. It It aims to provide an overview of disability history and laws.

What is Disability? Disability History and Laws

December 8, 2022

JSH Educational Webinar 6: Adapting to Support Learning At Home

This webinar with Jacqueline Wentworth, Pediatric Occupational Therapist and individual with with CP, and Debbie Fink, Vice President of Education and Inclusion at the Cerebral Palsy Foundation, overseeing its flagship “Just Say Hi” program. This webinar aims to help parents adapt and support academic success at home.

April 13, 2022

Preventive Care for Adults With Cerebral Palsy and Other Neurodevelopmental Disabilities: Are We Missing the Point?

Adults with Cerebral Palsy have unique care needs related to physiological changes that occurred with growth and development with Cerebral Palsy, including mental health, yet experience many barriers to proper care.

November 5, 2021

Optimizing Health and Wellbeing Across the Lifespan

Though the initial insult or injury to the brain that causes cerebral palsy is non-progressive, aging with cerebral palsy and lack of physical activity during critical periods of development can impact biologic and metabolic function for adults with cerebral palsy.

March 23, 2021

Designing Exercise to Improve Bone Health Among Individuals With Cerebral Palsy

There are multiple factors that impact bone health, including birth weight, nutrition, medications for seizures and/or reflux, genetics, and physical activity. Targeted exercise to improve bone health in childhood can be sustained into adulthood, and childhood is the best time to promote bone health.

July 1, 2020

One Size Does NOT Fit All- Using Multiple Means For Communication

Let me tell you about multimodal communication. We, as typical communicators, all use many different strategies. We use speech, gestures, facial expressions, technology, and no-tech solutions. As communicators, we all size up the situation based upon our communication partners, the context, the environment and then we choose to use the most effective communication strategy.

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