Our son was diagnosed with complex quadriplegic cerebral palsy at six months old. At the same time, we began to notice that he was struggling with vision. With persistence we found the right diagnosis and support.
Jen Lyman provides a parent perspective on powered wheelchair standing devices as it relates to Dr. Lisa Kenyon's research article.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
