This presentation from the 2023 AACPDM Community Forum presents and overview and a model creating opportunities for employment for individuals with disabilities.
Dr. Debbie Song, Gillette Children's, gives an overview of common neurosurgical procedures to address global tone in individuals with cerebral palsy.
This study highlights caregiver knowledge and preferences to understanding the GMFCS and how that information should be relayed from clinicians.
We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
As your child with CP is becoming a teenager, there are a couple of things you may want to think about.