| Cerebral Palsy Foundation

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October 6, 2021

Insights From Genetic Studies of Cerebral Palsy

Cohort-based whole exome and whole genome sequencing and copy number variant (CNV) studies have identified genetic etiologies for a sizable proportion of patients with cerebral palsy (CP). These findings indicate that genetic mutations collectively comprise an important cause of CP.

June 17, 2021

Saved by the Mom Squad

We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.

Photo of Lelia Purky wearing a straw har with a yellow flower with blue doodles

July 1, 2020

Pushing Boundaries & Changing Beliefs

It's important for all of us who are imposed with certain physical boundary conditions to push those boundary conditions as far as possible and maintain as much independence as absolutely possible.

July 1, 2020

Teen Years

As we all know, becoming a teenager means significant upheaval, not only physically, but in terms of friendships, in terms of learning, and life outlook. This is also true for adolescents with cerebral palsy and other developmental disabilities. We know that whilst we may of spent a lot of time focusing on their physical abilities and other difficulties it is not the only part of their life.

Representation of three friends with arms around each others shoulders

July 1, 2020

CP: The Early Years

Around the age of six all children are going off to school. Children move from explorative play, which is fairly informal to a much more formal day. That can be a lengthy day and it's quite structured. There are a lot of challenges faced by children with cerebral palsy throughout the school year.

A screenshot from the YouTube video, "The Early Years"

July 1, 2020

Muscle Tone & Early Development

When treating a child with CP, part of a pediatrician’s job is assessing and treating children with abnormal tone difficulties, as well as other muscular-skeletal problems. From around the age of two years, kids start to develop difficulties with muscle tone that can have an impact on their hip development.

Tylynn one year old, with pink birthday hat on

July 1, 2020

Is Cerebral Palsy Genetic?

To give you an idea about genetic variation between each of us, there are about three million differences in our genetic code. They go to influence the color of our hair and the color of our eyes, the way we walk.

July 1, 2020

Supporting Reading for a Child who is Non-Verbal

I'm going to be talking about AAC and reading and some different things that you might not think about when you are doing those types of activities. When you're supporting reading for a nonverbal child, whether they use a high-tech system or a light-tech system, like a paperboard, you want to make sure that they have plenty of the opportunities to contribute to the experience. You want to be able to comment. You want to be able to talk about the people, the places, the things, and maybe the feelings that they have.

Photo of Pati King Debaun with words that say Get the child engaged in reading with you

July 1, 2020

Looking To The Future- Thought to Speech

The future of science advancements is endless. In this video Dr. Ted Conway discusses the possibility of thought to speech. One of the really interesting areas of research in biomedical engineering is thought to speech. The concept of thought to speech is fairly straightforward, the execution to make this a reality is a little more complicated.

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