We got the diagnosis of Cerebral Palsy when Lelia was 18 months. I was really happy, as we didn’t know what was wrong with her before then. She had low tone. She couldn’t roll over. She couldn’t sit up. Of course she didn’t walk. The diagnosis gave it a name, something I could work with, and I became a kind of vigilante mother, determined to get the best care for my daughter.
It's important for all of us who are imposed with certain physical boundary conditions to push those boundary conditions as far as possible and maintain as much independence as absolutely possible.
The typical cognitive assessments that are used for children require them to be able to use their hands to point to pictures or hold puzzle pieces.
When it comes to preparing your child for Botulinum Toxin injections, the first most important thing to remember is to know your child.
For a child with CP learning to move, the really important things to remember are that the child should always be active.
The future of science advancements is endless. In this video Dr. Ted Conway discusses the possibility of thought to speech. One of the really interesting areas of research in biomedical engineering is thought to speech. The concept of thought to speech is fairly straightforward, the execution to make this a reality is a little more complicated.
When you're looking at setting goals for kids with complex communication needs, don't forget about setting goals that are about them interacting in the classroom. It's not just about punching buttons. It's not just about saying vocabulary words. It's about talking with people and showing who you are. Some specific goals that you can look at are in four areas. Educational goals, social goals, inclusion goals, and goals and independence.